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11-01-2007, 06:25 AM
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#1
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Senior Member
Join Date: Jun 2007
Location: RHODE ISLAND
(Ed getting me a latte on 2nd Cancerversary Cruise 2008)
'BELIEVE': To accept as true or real, To have faith in, To presume
ALWAYS BELIEVE
Posts: 3,000
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~Believe's Update For Mom's Biopsy
Ready for this one?? Mom's biopsy showed cancer!! She found out on her birthday!! I tried to tell her that it was a gift of empowerment, I reminded her that Ed's diagnosis day was not the worst day of our life it was the DAY BEFORE.....and that the day before we were powerless.
From what the surgeon has told her it is DCIS and basically explained what I had already braced her for from her questions. I know she is scared and sad but I also know of the pillar of strength she has inside. She is so cute too, she said "Just tell me what to do and I will do it to get better, Marie. Anything, just tell me".
Like I have always done before, I have listened to your journies and taken them into my heart and soul. When I have something that affects me differently (a new chemo regime, questions about a side effect, etc..) I call upon you girls, My Supreme Warriors!!
And now I call upon you, My Warrior Sisters to just ask for any feedback or suggestions about DCIS. Anything will be appreciated from you girls. As you know I am rather educated about Inflammatory Breast Cancer and I would like to be that educated about DCIS>Love and Prayers without the tears>>Believe51
__________________
9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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11-01-2007, 06:45 AM
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#2
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Senior Member
Join Date: Mar 2007
Location: CHARLOTTE NC USA
Home town (ECUADOR) South America
Posts: 542
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I' so sorry to hear this bad news , hate cancer hate cancer ...go away stupid "C" ............but you know what I have a strong felling that you Mom is going to be a Supreme warrior and she is going to be Ok like many in this site. my prayes go to your Mom,Ed and you, Dear Care giver Marie
__________________
Lily Diag April/06 5 months after give birth my son Max stage IV mets on liver (5 tumors) 38 year old, her2+++ and ER+PR+ from32 nodes 4 positives mastectomy right breast chemo before surgery herceptin/carboplatin/taxotere ,clear and surgery have radiation 20, `& then herceptin and tamoxifen NED until Aug/07 body only then 'n June 04-06-07 .1 lesion of 1.6 cm on cerebellum ...novalis ,open sugery 5m.m brain met again novalis, 4mm.In the liver. Waiting 2 months now 3 tumors enroll on T-MCC trial start first infusion Nov 5/07 at Dec 17 scan show one tumor despair the 2nd and 3th diminish Doc said great results until March/08 ct scan show progression 03-05-08 start tykerb & xeloda
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11-01-2007, 10:50 AM
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#3
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Senior Member
Join Date: Jul 2007
Location: Canada
Posts: 2,193
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your mom
Geez Believe, is this some kind of a test???? I'm so sorry for your
mom and for you and Ed. I can't comment on the DCIS stuff - don't know
too much about that. But I'm sure you will hear from the Warriors.
Good luck to all of you. I think your supper of chocolate and nuts was
quite called for.........
__________________
PinkGirl
Dx Aug/05 at age 51
2cm. Stage 2A, Grade 3
ER+/PR-
Her2 +++
Sept 7/05 Mastectomy
4 FAC, 4 Taxol, no radiation
1 year of Herceptin
Tamoxifen for approx. 4 months,
Arimidex for 5 years
Prophylactic mastectomy June 22/09
" I yam what I yam." - Popeye
My Photo Album
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11-01-2007, 12:23 PM
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#4
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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Hi Marie,
I don't feel "qualified" to talk to you about DCIS although I do have a friend who was diagnosed with it almost 1 year ago. She had a mastectomy because there were other areas of DCIS in the breast. She did not need chemo because the cancer wasn't invasive (lymph nodes negative too) nor radiation.
Basically wanted to reply though to offer my encouragement, send a hug and to tell you my prayers have been said for your mom, you and Ed this day.
Love,
Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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11-01-2007, 01:04 PM
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#5
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Senior Member
Join Date: Jun 2007
Posts: 2,210
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What is the next step? It will be important to know the stage.....
__________________
Bonnie
Post menopause
May 2007 Core biopsy, Rt breast
ER+, Pr-, HER2 +++, Grade 3
Ki-67: 90%
"suspicious area" left breast
Bilateral mastectomy, (NED on left) May 2007
Sentinel Node Neg
Stage 1, DCIS with microinvasion, 3 mm, mostly removed during the biopsy....
Femara (discontinued 7/07) Resumed 10/07
OncoType score 36 (July 07)
Began THC 7/26/07 (d/c taxol and carboplatin 10/07)
Began Herceptin alone 10/07
Finished Herceptin July /08
D/C Femara 4/10 (joint pain/trigger thumb!)
5/10 mistakenly dx with lung cancer. Middle rt lobe removed!
Aromasin started 5/10
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11-01-2007, 01:12 PM
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#6
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Senior Member
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
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Oh Marie. First a big hug to you. I do know all about DCIS as I had it on the other side. First, I am assuming she will need to get the DCIS completely removed. When that happens, pathology will tell you a couple of things. One is whether or not there are clean margins. If not, she will need to get clean margins. DCIS can grow one of two ways. It can grow up the duct and completely fill it (laterally). If this is the case, clean margins may be impossible (like a straw filled with liquid, you keep cutting but you never get a clean margin so the entire breast has to be removed for a good cosmetic outcome). The other way is a one point eventually growing outward or just beginning so it hasn’t traversed the entire duct. This makes for a good lumpectomy with clean margins. After that, you HAVE to make sure there is no invasive component. Then it changes from DCIS to IDC if you do. This is important. Important enough that you must send the slides for another pathology opinion. You have to (without a shadow of a doubt) make sure she does not have invasive cancer just beginning. If she does, she needs to have the sentinel node checked. You’ve taken Ed to Dana Farber so that would be a great place for a second opinion that it is truly only DCIS. Lastly is the pathology – is it ER+/PR+, Her2 etc. If she has a small DCIS with lumpectomy with wide excision margins – DO NOT opt for no radiation without at least 3 opinions. I was stupid on this but I didn’t know so I have wide excision lumpectomy with no radiation. However, Dana Farber says that no DCIS is too small not to have radiation (my DCIS was ER+/PR+ Her 2 neg and only 3mm) but none-the-less!!!! Keep us informed. We will help you along the way. We all love you Marie. Hang in there. My mother (who also had a small IDC and a survivor) always tells me that God doesn’t give you more than you could handle. You must be one hell of a woman darling’!!
__________________
Kind regards
Becky
Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia
NED 18 years!
Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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11-01-2007, 01:18 PM
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#7
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Senior Member
Join Date: Jun 2007
Location: RHODE ISLAND
(Ed getting me a latte on 2nd Cancerversary Cruise 2008)
'BELIEVE': To accept as true or real, To have faith in, To presume
ALWAYS BELIEVE
Posts: 3,000
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Becky
Thanks for the imput as always, I cannot believe you even had time to write while Tiptoe is there. You are an amazing friend. Where in the world did you find the time to even read?? Keep us posted on Tippy, we miss her so. I will be posting her journal entries & pics soon.>>Love you right back>>Believe51
__________________
9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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11-01-2007, 01:48 PM
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#8
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Senior Member
Join Date: Nov 2005
Location: Lincoln, Rhode Island
Posts: 371
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My Dear Marie,
I am heart broken about this news, but I know your mom will be ok she will beat this! I love you and I am right here whenever you need me. We need to go to the angel store when you can. Please give Mom and Ed a big hug and kiss and know they are and of course you are in my prayers.
__________________
Love and Hope
Karen
IDC
DX 1998 STAGE I ER+/ PR+
AC CHEMO TILL FEB 1999
Tamxofin till 2001
2001 exstensive liver mets and mets to lungs
Started weekly taxol
Jan 2002 found out I was strongly HER2POS+++ started herceptin continued with taxol and herceptin till June 2002 then from June 2002 till Jan 2005 just herceptin and Arimidex
2005 Navelbine herceptin had RFA Then back on taxol with herceptin
April 2006 progression again went on clinical trial with tykrerb/herceptin progressed on the started Xeloda/ herceptin
Feb 2007 started Doxil
August 2007 Taxotere,Carboplatin and Herceptin exstensive mets to liver and pancreas
October 2007 Had to stop Carboplatin due to sever allergic reaction
Jan 2008
Stopped Taxotere due to progression now on Gemzar and Herceptin
March 2008 Starting Carboplatin, Abraxane, and Herceptin.
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11-01-2007, 02:18 PM
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#9
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Senior Member
Join Date: Sep 2006
Location: Houston, Texas
Posts: 624
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So sorry to hear the news. I will be keeping you, Ed, and your mother in my prayers. I am praying for a cure for both!!!!!!
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11-01-2007, 02:33 PM
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#10
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Senior Member
Join Date: Sep 2005
Location: Ohio
Posts: 212
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I'm sorry to hear of your mother's cancer diagnosis. I was diagnosed on my birthday, too--I like what you told her about it being a gift of empowerment... it's true, although I didn't appreciate that at the time. Anyway, my original diagnosis was DCIS and I opted to have a mastectomy (with no further treatment planned), but then the pathology report came back with findings of invasive cancer. Don't mean to scare you with this, but, as Becky said earlier, you have to make sure there is no invasive cancer involved, too. My surgeon didn't bother to take any lymph nodes at the time of my mastectomy (since the initial biopsy showed only DCIS), so after invasive cancer was found I had to go back for axillary dissection surgery, just to check for cancerous lymph nodes (I had 11 positive nodes). So basically after being told it was "just DCIS--Stage 0" it turned out to be actually invasive cancer, Stage III. Fortunately, I had aggressive chemo, radiation and Herceptin and am doing FINE now, six years later, Thank God. I'll pray your mom doesn't have to go through any of this, that it is just a stage 0, non-invasive cancer. She and Ed are lucky to have you to lean on! Sending you a big hug,--Audrey
__________________
Audrey
diagnosed July 2001, at age 36
large tumor, 11+ nodes
Stage IIIb, er/pr-, Her2+
treated with A/C, weekly Taxol
radiation, + year of Herceptin
on clinical trial. double mastectomy
followed by reconstruction
NED!!
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11-01-2007, 03:19 PM
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#11
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Senior Member
Join Date: Jun 2007
Location: moved to Lancaster, Pa in June, 2010
Posts: 576
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So sorry to hear about your mother's diagnosis. With you there to guide her and stand by her, she will survive this. Sending lots of prayers to heaven for all three of you.
__________________
Debbie in North Carolina
Diag 10/2006-high grade invasive ductal carcinoma- mastectomy L breast
2.5 cm tumor ER/PR pos-Her2+++
4 rounds A/C, 4 rounds Taxol
Herceptin every 3 weeks until Jan. 2008
6/18/07 prophylatic mastectomy R breast
8/2007 started aromasin/stopped arimidex (side effects)
12/07 stopped aromasin due to side effects (now what?)
Finished herceptin 1/8/08
started tamoxifen for 2 years then will switch to femera
allergic to tamoxifen started femera 4/2008
June 20, 2008 portacath removed
Learnig to live life to the fullest!
Stopped Femera due to side effects
July 28, 2008 start trial for breast cancer vaccine
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11-01-2007, 04:41 PM
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#12
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Senior Member
Join Date: Nov 2005
Location: Northern Calif.
Posts: 981
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I am sorry to read about your mom's diagnosis. SHe is lucky to have a terrific and nurturing daughter like you to help her get through. Please let her know that she is in many prayers.
Hugs,
Lexi
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11-01-2007, 07:06 PM
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#13
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Senior Member
Join Date: May 2007
Location: Northern Michigan
Posts: 68
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Marie my love,
Marie,
My heart just sunk again reading your post. Give Mom a big hug from all of us and she has to know that she could not have a better supporter/advocate than you Marie.
breastcancer.org has info on their front page about DCIS. From skimming through it, I did catch that this is a non-invasive cancer. This is some good news.
Please keep us updated on Mom when you find things out and find time.
Big hugs to you Marie, Ed & Mom,
You are my sunshine.
Love,
Michelle
__________________
Sept. 2003- 5cm tumor in left breast Her2+ Er- Pr- grade 3,
Mastectomy & 11 nodes removed, all negative.
4 rounds A/C + 12 wky Taxol
25 rads
Dec 2006- recurrence Stage IV (diagnosed 3 days before Christmas!) Lymph nodes in chest, liver, 3 ribs
January 2007- 3 tri wkly rounds of Taxol/Herceptin
Response to lymph nodes in chest, but several more bone mets (skull, shoulders, more ribs, femur, several on spine), liver tumors still growing.
March 2007- 8 wkly rounds of Navelbine/Herceptin/ every 4th wk Zometa
Lymph nodes in chest look great, but more bone mets (of course!), Clavicles, hips, and sacrum (above tail bone) to add to the list. Liver mets still growing.
June 5- started Tykerb/Xeloda
Aug 14- Scans are showing great progress! Tumor shrinkage and bones are healing!
Nov 21 CT scan shows tumor growth in liver & bones next Doc appt on 11-27
Dire need of a lot of prayers and a miracle.
Stay at home mom, 5 yr old girl & 8 yr old boy.
Wife of loving husband
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11-01-2007, 07:33 PM
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#14
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Senior Member
Join Date: Oct 2005
Posts: 3,519
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Oh my word Marie - yikes! Your mom is one lucky woman, though, to have you as her consultant through this trying time. DCIS is 'ductal carcinoma in situ', and at it's most simple, 'in situ' means "defined by the absence of invasion of surrounding tissues."
Becky has pretty much given you a great primer... let us know what you need.
__________________
Brenda
NOV 2012 - 9 yr anniversary
JULY 2012 - 7 yr anniversary stage IV (of 50...)
Nov'03~ dX stage 2B
Dec'03~ Rt side mastectomy, Her2+, ER/PR+, 10 nodes out, one node positive
Jan'04~ Taxotere/Adria/Cytoxan x 6, NED, no Rads, Tamox. 1 year, Arimadex 3 mo., NED 14 mo.
Sept'05~ micro mets lungs/chest nodes/underarm node, Switched to Aromasin, T/C/H x 7, NED 6 months - Herceptin only
Aug'06~ micro mets chest nodes, & bone spot @ C3 neck, Added Taxol to Herceptin
Feb'07~ Genetic testing, BRCA 1&2 neg
Apr'07~ MRI - two 9mm brain mets & 5 punctates, new left chest met, & small increase of bone spot C3 neck, Stopped Aromasin
May'07~ Started Tykerb/Xeloda, no WBR for now
June'07~ MRI - stable brain mets, no new mets, 9mm spots less enhanced, CA15.3 down 45.5 to 9.3 in 10 wks, Ty/Xel working magic!
Aug'07~ MRI - brain mets shrunk half, NO NEW BRAIN METS!!, TMs stable @ 9.2
Oct'07~ PET/CT & MRI show NED
Apr'08~ scans still show NED in the head, small bone spot on right iliac crest (rear pelvic bone)
Sept'08~ MRI shows activity in brain mets, completed 5 fractions/5 consecutive days of IMRT to zap the pesky buggers
Oct'08~ dropped Xeloda, switched to tri-weekly Herceptin in combo with Tykerb, extend to tri-monthly Zometa infusion
Dec'08~ Brain MRI- 4 spots reduced to punctate size, large spot shrunk by 3mm, CT of torso clear/pelvis spot stable
June'09~ new 3-4mm left cerrebellar spot zapped with IMRT targeted rads
Sept'09~ new 6mm & 1 cm spots in pituitary/optic chiasm area. Rx= 25 days of 3D conformal fractionated targeted IMRT to the tumors.
Oct'09~ 25 days of low dose 3D conformal fractionated targeted IMRT to the bone mets spot on rt. iliac crest that have been watching for 2 years. Added daily Aromasin back into treatment regimen.
Apr'10~ Brain MRI clear! But, see new small spot on adrenal gland. Change from Aromasin back to Tamoxifen.
June'10~ Tumor markers (CA15.3) dropped from 37 to 23 after one month on Tamoxifen. Continue to monitor adrenal gland spot. Remain on Tykerb/Herceptin/Tamoxifen.
Nov'10~ Radiate positive mediastinal node that was pressing on recurrent laryngeal nerve, causing paralyzed larynx and a funny voice.
Jan'11~ MRI shows possible activity or perhaps just scar tissue/necrotic increase on 3 previously treated brain spots and a pituitary spot. 5 days of IMRT on 4 spots.
Feb'11~ Enrolled in T-DM1 EAP in Denver, first treatment March 25, 2011.
Mar'11~ Finally started T-DM1 EAP in Denver at Rocky Mountain Cancer Center/Rose on Mar. 25... hallelujah.
"I would rather be anecdotally alive than statistically dead."
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11-01-2007, 09:05 PM
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#15
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Senior Member
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
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Marie,
I'm sorry to hear your mom's results. Just be patient and wait for the full pathology report as that will have the information you need to plan. I'm praying that it is only DCIS and not invasive.
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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11-01-2007, 09:17 PM
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#16
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Senior Member
Join Date: Jun 2006
Location: Bradenton,FL
Posts: 977
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Marie,
Just another Her2er hoping that Moms pathology shows only DCIS. Beckys given you an excellent bit of information. Gosh, I am just so sorry that you have another loved one fighting this beast!
Warmly,Marcia
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11-01-2007, 10:45 PM
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#17
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Senior Member
Join Date: Sep 2005
Location: Mountains of Virginia
Posts: 2,267
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Marie,
Just wanted you to know that I am thinking of you and keeping you in my prayers. Your mom is lucky to have you standing by her side. More prayers for Mom and Ed.
__________________
Rhonda (Sassy)
dx age 45
DX 2/15/05 Stage IIb (at surgery)restaged IIIa
Left mast .9cm tumor 5 of 14 nodes
Triple Positive
4 DD A/C
12 Taxol/Herceptin
33Rads
Strange infect mast site one year aft surg, hosp 1 wk
Herceptin for total of 18 months
Lupron Monthly 4 yrs
Neurontin for aches, pains and hot flashes(It works!)
Ovaries removed 11/09 stop Lupron and Neurontin
Arimidex 6 yrs (tried Femara, no SE improvement)
Tried Exemestane-hips got so bad could hardly walk
Back to Arimidex for year seven
Zometa 2X Annual for 7years, Lasix
Stop Arimidex 5/13
Stop Zometa 7/13-Bi-lateral Stress Fractures in Femurs from Zometa
5/14 Start Tamoxifen
3/15 Stem cell transplant to stimulate femur bone growth/healing
5/15 Complete fracture of right femur/Titanium rods both femurs
9/16 Start Evista stopTamoxifen
3/17 Stop Evista--unwelcome side effects!
NED and no meds.......
14 YEARS NED!
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11-02-2007, 08:36 AM
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#18
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Senior Member
Join Date: Jun 2007
Location: RHODE ISLAND
(Ed getting me a latte on 2nd Cancerversary Cruise 2008)
'BELIEVE': To accept as true or real, To have faith in, To presume
ALWAYS BELIEVE
Posts: 3,000
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Thanks Warrior Chiefs...
You are all certainly my 'peeps', I adore each and every one of you. Thanks for all the advice, private e-mails, and links to DCIS. I am so honored to call you my family. Surely an amazing group of Troopers. Prayers, cyberhugs and gynormous hugs coming your way today as every day. My life is so very full with you all, you are the best gifts I have ever had!!!!>>Believe51
__________________
9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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11-02-2007, 02:53 PM
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#19
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Senior Member
Join Date: Oct 2005
Location: LAND OF YES!
w/home in Boca Raton, Florida
Orig from L.I., N.Y.
Ever hovering IN THE NOW...
Posts: 1,904
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Just To Let You Know...
Hi Marie!
I had the privilege of hearing your voice with this awful news, as I also heard your strength and resolve. I am encouraged that Ed perked up and is now cheerleading. It is good for him to hear his own words coming from his SPIRIT out loud. As he reassures Mom he will become even more resolute in his own battle. This has given him fresh motivation. So something good always comes from something bad.
I pray Mom's is *only* DCIS, as the others have mentioned. I agree w/2 pathology reports. I tried my darnedest to get my fried to do this, to no avail. At least your Mom will listen to you. You are such a beautiful person, Marie. You have double the reason to remain stalwart and determined. You will bring these two people through this with your wisdom and your sunshine. You light up this board with the radiance of your BELIEF. Please know you, Ed and Mom are constantly in my heart, in my thoughts and in my prayers!!!
LOVE AND BIG GYNORMOUS HUGS FOR YOU ALL,
Andi
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Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...
'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...
Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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11-03-2007, 08:42 AM
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#20
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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Marie,
I am so sorry that you have received the news on your MOM.
Your strength, attitude and most of all, your love will keep Ed and Mom
strong. You are their shepard...will keep all of you in prayers.
Hugs,
Jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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