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Old 10-27-2007, 09:41 AM   #1
fullofbeans
Senior Member
 
Join Date: Jan 2007
Location: UK
Posts: 617
The uncertainty of sciences can be a frustrating concept at best of time but is a concept that is especially difficult for us to accept since we would like definitive answers.

Just like a chemo works for some and not for others we have to accept that until now there are no bullet proof TMs.

In the meantime what is a girl to do?, well I will no longer go there;-)
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35 y/o
June 06: BC stage I
Grade 3; ER/PR neg
Her-2+++; lumpectomies

Aug 06: Stage IV
liver mets: 6 tumours
July 06 to Jan 07: 2*FEC+6*Taxotere; 3*TACE; LITT
March 07- Sept 07: Vaccination trial (phase 2, peptide based) at the UW (Seattle).
Herceptin since 2006
NED til Oct 09
Recurrence Oct 2009: to internal mammary gland since October 2009 missed on Oct and March 2010 scan.. palpable nodes in May 2010 when I realised..
Nov 2011:7 mets to lungs progressing fast failed hercp/tykerb/xeloda combo..

superior vena cava blocked: stent but face remains puffy

April 2012: Teresa Trial, randomised to TDM1
Nov 2012 progressing on TDM1
Dec 2012 blockage of my airways by tumours, obliteration of these blocking tumours breathing better but hoping for more- at mo too many tumours to count in the lungs and nodes.

Dec 2012 Starting new trial S-222611 phase 1b dual egfr her2+ inhibitor.



'Under no circumstances should you lose hope..' Dalai Lama
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Old 10-27-2007, 10:51 PM   #2
dee
Senior Member
 
Join Date: Sep 2005
Location: Spokane/Warden, WA
Posts: 67
One. Tiny. Thought -

From a tiny member of the Silent Majority... - I suspect your collective thoughts and writings on this major subject have been tiresome to some of you involved, as 'evidence' from the narrative would indicate. For us, it's been invaluable. Thanks for your risk taking behavior. We appreciate your dialogue!

Dee
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dee

4 year bc/her2neu survivor
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Old 10-28-2007, 05:02 AM   #3
newgg
Senior Member
 
Join Date: Dec 2005
Location: virginia
Posts: 99
"Power"

Agree with Dee and from another member of the folks that read this board every day......all you risk takers give the entire board....you give us POWER! And we will not "should" on ourselves or each other. What we should or should not do ....that goes directly go our personal decision and our individual comfort zone. BUT.....we all need many pieces of the POWER pie to travel this journey. Some have all these power pieces...you know: Power of faith, Power of family, Power of modern chemicals, Power of strong support, Power of attitude and here we get the Power of Knowledge !! We do not have to agree and we can agree to disagree. These discussions give all of us added resource to our Power of Knowlege. There is NO other place to learn more about HER2 serum, power ports, cyber knife, chemo combos, crazy hair, shared giggles and love. Thank you, Thank you, Thank you....for the info and discussion and the POWER ! Keep it up !!! Hugs, Bonnie
PS....my personal comfort zone is to do the markers.
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