Want to talk with ER/PR neg and HER2 pos

gracelmj · 08-31-2007, 02:37 PM

Is this site only for Cancer survivors? My mom was diangosis with Breast Cancer alittle over 5 years ago and now resently found 4 cm mass in left lower lobe of lung and 2 cm mass in adreanal gland. She had a PET scan done, but no results yet. Does anyone know if Radiologist "impressions" holds much value? Or do we need for Pet Scan results to come back before knowing for sure if she has cancer. Based on all the finding, a nurse said "It doesn't look good, we need to pray it's not 4th Stage". That sounds like "cancer for sure". I have the Finding Report if anyone knows how to discifer it.

Worried, Dazed and Confused
Linda
Fairfax, VA

tousled1 · 08-31-2007, 03:27 PM

Linda,

This website is for cancer survivors and their caregivers. Radiologists are trained to distinguish cancer masses from benign masses. The best test to check for metastic cancer is a PET/CT scan. My lung mets were found by a routine CT scan and my brain met by a routine brain scan. Cancer is a very scary disease and is very unpredictable. When does your mother have a follow up appointment to discuss the results of the PET scan? the worst part of this dreadful disease is waiting for test results. I'll keep your mother in my prayers. And if it is Stage IV there are many treatment options available. Don't give up.

Catherine · 08-31-2007, 09:25 PM

Linda,

I am not sure who is in charge of your mother's treatment. My radiologist was the least helpful, and had a bad, bed-sider manner. He was a know it all and refused to share the truth.

I received the best information and referrals from my oncologist and my surgeons. I was scheduled for all the pt scans, cat scans, mris and pelvic ultra sounds.....etc. These doctors wanted to know what was going on in my body once I FOUND THE TUMORS IN MY BREAST. Make sure you are working with good people. Do not get too scared. There are wonderful options and treatments for all of us.

All the best, CAtherine