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Old 08-22-2007, 05:13 PM   #1
Debra
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Join Date: Dec 2006
Posts: 136
Thank you ladies!

I just needed a little reassurance from "the wise ones" as I see all of you!! There is just so much info out there about what may or may not interfere with meds or "stir up" anything else that I hate to take anything extra. However, I need some relief from joint pain so I am willing to try anything short of going off arimidex.
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Debra

Diag. 11/05 at age 40 triple positive
3.8 cm tumor and 9 mm tumor
Stage IIb/SN positive(no other nodes)Grade 3
Bilat. mastect. 12/05 (Rt.prophylactic) followed with AC/taxol/Herceptin/tamoxifen then switched to arimidex after hysterectomy in 12/06. August 07 switched to Aromasin due to severe jt. pain from Arimidex. Nov. 2011 No more meds and NED!
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Old 08-22-2007, 05:46 PM   #2
Becky
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Location: Stockton, NJ
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I use Iceland Health Joint Relief. It has omega 3 in it too and we all know we need that! You can get it online.
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Kind regards

Becky

Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia

NED 18 years!

Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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Old 08-23-2007, 11:52 AM   #3
tricia keegan
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Location: Ireland
Posts: 3,463
I also take glucosamine/chondroitin for relief from arimdex related joint pain and neuropathy, I find it good too although it only eases the discomfort rather than erasing it.
I found it took about six weeks before I noticed a difference though.
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Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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Old 08-23-2007, 12:12 PM   #4
Becky
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I agree with Tricia. I took 2X the amount for the first 2 weeks then the recommended amt and started to get relief after a month or so.
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Kind regards

Becky

Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia

NED 18 years!

Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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Old 08-23-2007, 05:00 PM   #5
caya
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Location: Thornhill, Ontario Canada
Posts: 2,320
Will this help with Tamoxifen joint pain too?
I have been on Tamoxifen since July 10th - the first 2 -3 weeks were awful with the joint pain. My onc. explained how my poor body is being slammed into instant menopause, hence the severity of the aches. I got a script for Naproxen ( in Canada this is Aleve but a stronger dose). It did help, and now I take one pill a day, not two (and can miss a day).
I am interested in this supplement - anyone had any relief from Tamoxifen pains. It seems most of you taking it are on an AI - I will ask my onc. about it next week when I go for my Herceptin infusion.
Re: Omega 3 - how much do you take?

Thanks
caya
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ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08
Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
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Old 08-23-2007, 08:00 PM   #6
tousled1
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Location: Acworth, GA
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Caya,

I'm taking it and I am not on any AI as I am ER/PR-. I have neuroptathy and it really does help.
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Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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