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Old 08-22-2007, 02:40 PM   #1
Lolly
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Location: Oregon
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I've always been told the last meal should be low carbohydrate and fat.
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Sept.'99 - Dx.Stage IIIB, IDC ER/PR-, HER2+++ by IHC, confirmed '04 by FISH. Left MRM, AC x's 4, Taxol x's 4, 33 Rads, finishing Tx May 2000. Jan.'01 - local/regional recurrence, Stage IV. Herceptin/Navelbine weekly till NED August 2001, then maintenance Herceptin. Right Mast. April 2002. Local/Regional recurrence April '04, Herceptin plus/minus chemo until May '07. Gemzar added from Feb.'07-April '07; Tykerb/Abraxane until August '07, back on Herceptin plus Taxotere and Xeloda Sept. '07. Stopped T/X Nov. '07, stopped Herceptin Dec. '07, started Avastin/Taxol/Carboplatin Dec. '07. Progression in chest skin, stopped TAC March '03, started radiation.

Herceptin has served as the "Backbone" of my treatment strategy for over 6 years, giving me great quality of life. In 2005, I was privileged to participate in the University of Washington/Seattle HER2 Vaccine Trial.
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Old 08-22-2007, 04:12 PM   #2
Brenda_D
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When I had my Pet/Ct, they said nothing containing sugar the day before, and nothing after midnight. I just got the injection. I didn't have to drink anything.
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12/12/06- IDC Stage III, 4x A/C, 35 rads, Herceptin 1 year
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Old 08-22-2007, 04:45 PM   #3
chrisy
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For the PET/CT, they do want you to have as little "extra" glucose in your system as possible, so that the only glucose is the radioactive one they inject. That would jive with the "last meal should be protein" recommendation.

I've also been instructed to drink water but I don't remember why. Maybe to help flush the contrast out. They inject the glucose then you have to wait 45 minutes - so they give me a bunch of water to drink while I'm waiting, then have me empty my bladder so I can handle laying in the scanner for the next half hour! Sorry if TMI Afterward, they also have EVERYONE IN THE BUILDING tell me to drink lots of water and sometimes they give me a water bottle on the way out the door.

For PET/CT I've not had to drink the contrast - although I did for CT only. Not too disappointed on that, since they give "berry smoothie" a bad name.

Also, Stephanie's right - no strenuous exercise the day before and the morning of the scan. This instruction has been down to the level of "don't even talk or walk around while waiting for the isotope to travel around". This is because any movement or inflammation will cause your muscles to to "take up" the contrast. So less easy to get clear images.

Here's hoping that "NOTHING" shows up on the scan.
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Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial

5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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