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Old 08-21-2007, 05:57 PM   #1
Chelee
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Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
I want to thank all of you for your condolences and heart felt words of support. I am deeply moved by all your kind words. My gratitude to all of you is inexpressible. I know its only been six days since my Mother passed away but the pain seems to get worse each day. Its the realization that I can never pick up that phone and talk to her again. Let alone I usually went to see her at least 3 or 4 times a wk. Tomorrow will be very difficult because it will be the 1st day since her passing that I have two doctors appts. One on Wed., and then Thrus. I would *always* swing by my Moms house after running an errand or going to a doctors appt. There was hardly a time I ran out without stopping by to see her.

My Dad died when I was only 5 yrs old. Died of a massive heart attack. Since Dad died my Mother has been everything to me. My Mom, sister and best friend. I was so blessed to have her in my life. I have lots of wonderful memories of her that no one can take away...but the thought that I can never talk to her again is so painful. There is so much I'm going to miss about her. I feel like such a big part of me is missing never to be the same. I'm glad she is without pain and no longer suffering...but oh how I wish I had her back again....even for just five minutes. She told me once if something happened to her to pull myself by my bootstraps and keep going. How I wish it were that easy. Again...thanks to all of you for your heartfelt condolences. I appreciate all your kind words...it means more to me then you could possible know at this difficult time. Thanks for all your kindness & words of comfort. I really needed it. I knew this is the one safe place I could express myself.

Chelee
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DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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Old 08-21-2007, 08:21 PM   #2
chrisy
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Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
Chelee,
My mom died after struggling with illness for some time. A few days after she passed, she came to me in a dream. She was dancing on a railing in a crowded plaza. I believe she was telling me she was happy and free, once again.

And she is with me still.
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Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial

5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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