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08-10-2007, 03:37 AM
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#1
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Senior Member
Join Date: Jun 2006
Location: San Antonio, TX
Posts: 2,357
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Good Morning Kate!
A million hoorays for your Irish luck! It was so good to wake and find your message and to know, most of all, that you are in such great hands! It matters so much who takes care of us. You hang on to that Irish luck for the next couple of weeks as you walk through this experience. Oh, yes, and carry along all the well wishes and prayers from your Her2 family!
luv, ma
__________________
MA in TX.
Grateful for each and every day....
Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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08-10-2007, 04:35 AM
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#2
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Webmaster
Join Date: Feb 2005
Location: Home of the "Flying Tomato"
Carlsbad, CA
Posts: 2,036
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Cyberknife and Gamma Knife are basicly the same procedure.
Regards
Joe
__________________
A Proud webmaster to the internet's most informed, educated, COMPASSIONATE and caring group of breast cancer survivors.
Illegitimi non carborundum
My Album
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08-10-2007, 07:18 AM
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#3
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Senior Member
Join Date: Mar 2006
Posts: 306
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Joe,
While the radiation focally given may be basically the 'same', the experience is VERY DIFFERENT.
Three times I had Linear Accelerator screwed on headframes, (more similar to the Gamma Knife) ,waiting all day from 7am to done at 6pm, with the headframe on, taking pain meds when the 'pin sites' became painful, trying to drink or eat anything with that huge frame on head, trying to 'rest' or get 'comfortable', getting the headframe removed being very painful in itself, the excruciating headache for two hrs after each of the three procedures........
Compared to CyberKnife. Less than an hour to make the mask. Seconds with hot mesh on face.
In at 10:30am, mask tightly fastened down on table, tight on face, an hour for multiple sites treated, out the door at noon. I did this twice, two days apart to address six brain mets.
So, for me personally... I would never say that CyberKnife and Gamma Knife are basically the same procedure. Not even close.
pattyz
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08-10-2007, 08:32 AM
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#4
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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Kate, Kate, Kate.............
YOU are awesome! Truly. An inspiration to us all. Your strength, determination and overall PEACE radiate from your posts.
I thank God for you here and also pray His CONTINUED presence in all you are going through. Of course I know He is and will CONTINUALLY be with you so, I thank Him right now for that.
Take care today - rest easy!!!!!
Sending all my love and prayers,
Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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08-10-2007, 09:02 AM
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#5
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Senior Member
Join Date: Mar 2007
Location: CHARLOTTE NC USA
Home town (ECUADOR) South America
Posts: 542
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thanks for let us know ...everything , I'm checking everyday your post .... cyberknife and novelis ...are almost the same and the diferent with gammaknife ...is #1 is more precise and acurate and more fast ....and there using only five years ago ...gammaknife is being used it for 20 years ago so far ....I have novelis presedure twice and is really easy like cyberknife ......good luck and like my doctor said ...let hope this is the last one ......and like I say let's put this on GOD hands .....He will do it ...for you
__________________
Lily Diag April/06 5 months after give birth my son Max stage IV mets on liver (5 tumors) 38 year old, her2+++ and ER+PR+ from32 nodes 4 positives mastectomy right breast chemo before surgery herceptin/carboplatin/taxotere ,clear and surgery have radiation 20, `& then herceptin and tamoxifen NED until Aug/07 body only then 'n June 04-06-07 .1 lesion of 1.6 cm on cerebellum ...novalis ,open sugery 5m.m brain met again novalis, 4mm.In the liver. Waiting 2 months now 3 tumors enroll on T-MCC trial start first infusion Nov 5/07 at Dec 17 scan show one tumor despair the 2nd and 3th diminish Doc said great results until March/08 ct scan show progression 03-05-08 start tykerb & xeloda
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08-10-2007, 10:11 AM
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#6
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Senior Member
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
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Well, Kate, is that the decadron talking or do you have a crush on the fabulous Dr. Mark??? He sounds terrific - I'm so glad you have such a competent AND delightful team! Sounds like you and your team are very much on top of things. You are such a strong spirit - I so admire your diligence on this.
Take care
Chris
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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