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08-06-2007, 05:50 PM
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#1
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Senior Member
Join Date: Jan 2007
Location: Thornhill, Ontario
Canada
Posts: 2,320
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Kate,
Sorry your scan showed this small brain mets - but it is small and was caught early - very treatable and you will conquer it.
I am wishing for a complete recovery for you, you are a WARRIOR and it sounds like your docs know exactly what to do.
all the best
caya
__________________
ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08
Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
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08-06-2007, 05:55 PM
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#2
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Senior Member
Join Date: Nov 2005
Location: Lincoln, Rhode Island
Posts: 371
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Kate,
I am so sorry about this, you will beat this,It sounds like you have a great doctor. Here's to kicking butt my friend! Your in my thoughts and prayers.
__________________
Love and Hope
Karen
IDC
DX 1998 STAGE I ER+/ PR+
AC CHEMO TILL FEB 1999
Tamxofin till 2001
2001 exstensive liver mets and mets to lungs
Started weekly taxol
Jan 2002 found out I was strongly HER2POS+++ started herceptin continued with taxol and herceptin till June 2002 then from June 2002 till Jan 2005 just herceptin and Arimidex
2005 Navelbine herceptin had RFA Then back on taxol with herceptin
April 2006 progression again went on clinical trial with tykrerb/herceptin progressed on the started Xeloda/ herceptin
Feb 2007 started Doxil
August 2007 Taxotere,Carboplatin and Herceptin exstensive mets to liver and pancreas
October 2007 Had to stop Carboplatin due to sever allergic reaction
Jan 2008
Stopped Taxotere due to progression now on Gemzar and Herceptin
March 2008 Starting Carboplatin, Abraxane, and Herceptin.
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08-06-2007, 06:15 PM
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#3
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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Teentsy Weentsy one
Dear Kate -
Even though I HATE your news, I am glad that it is so small and that you most likely will not have to take the dreaded Decadron Drug From Hell. That in itself is a large bullet to dodge.
AND you have no symptoms that you have mentioned, so I will take that as NO symptoms. The Cyberknife was well described (by Kim in DC, I think) and she added a pic of herself with the face mask. You can probably find it in the archives if you search Cyberknife. We had a lot of talk about that at one point, but no one here lately seems to have used that option.
I know you are glad that you can go with one of the radiosurgery options. Once you know what you have and have a plan, it is easier news to take.
Fight, fight on. Just don't grit those teeth TOO hard.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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08-06-2007, 06:25 PM
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#4
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Senior Member
Join Date: Sep 2005
Location: Mountains of Virginia
Posts: 2,267
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Kate,
Be Strong and of good Courage! Know you are in all our prayers.
________
Paxil Lawsuites
Last edited by sassy; 08-22-2011 at 09:25 AM..
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08-06-2007, 06:25 PM
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#5
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Senior Member
Join Date: Sep 2006
Location: Marengo, IL
Posts: 518
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Oh Kate I am so sorry. But you are a fighter and will beat this. So glad you were on top of things and found this early.
Many are praying for you.
Donna
__________________
Donna
Crystal Lake, IL
Diagnosed 8/4/06 at age 54
Lumpectomy 8/30/06
Stage llA, grade 3, ER/PR-, Her2++
1.7 cm tumor, 1+ lymph node out of 9
Completed 4 A/C, & 4 Taxol with Herceptin
36 rads completed 5/16/07
Mammograms, 7/07 clear
fractured ribs in radiated area 10/07
Finished Herceptin 12/27/07
Mammogram,CT,tumor markers 1/08 - small lung nodules in radiated area, repeated tests 3/08 stable
Mammogram,CT ,tumor markers 6/08 stable
NED 2 years!!
3 years !!!
4years!!!!
4 years, 10 months and 8 day NED, calling it 5 years!!!
Official 5 years 8/30/2011
8/31/ 2012 - 6 years!!!!!!
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08-06-2007, 06:36 PM
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#6
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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Dear Kate,
I'm so sorry. Like you, not the news anyone wanted to hear.
Praying good things to come for you. Keep the faith.
Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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08-06-2007, 06:42 PM
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#7
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Senior Member
Join Date: Jun 2006
Location: South Florida
Posts: 477
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Kate,
I am sorry that you got this news. You are in my prayers as always!
Love, Hope, and Peace,
Carolyn
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08-06-2007, 06:51 PM
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#8
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Senior Member
Join Date: Aug 2006
Posts: 3,380
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Kate,
I am so sorry to hear this news. You are in my thoughts. Best of luck with your treatment.
Hopeful
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