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08-05-2007, 02:30 PM
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#1
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Senior Member
Join Date: Dec 2005
Location: Michigan
Posts: 230
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Gina,
I am not clear I have 2 straight lines. From the site Rhonda recommended it indicates I could have a high or low simian line. For the record I was diagnoses ER-PR- her2+++ and I am RH-.
Mary
__________________
Mary
Diagnosed 11/04 @39yrs. young
Stage IIB
2.5 cm, ER/PR- Her+++, grade 3
Partial Mast., 1/3 pos. node
1/05 full node dissection
4 A/C 4 Taxol DD, Herceptin 1 yr.
30X rads.
BRCA Negative
NED
Hope is the thing with feathers
That perches in the soul,
And sings the tune without the words,
And never stops at all -Emily Dickinson
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08-05-2007, 03:33 PM
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#2
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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Hi -
I posted earlier that I do NOT have a simian line - but my HUBBY does. On his right hand.
He was looking at me a little askance, as he never thought much of it.
He has a strong Russian component in his genes, and they have a saying "scratch a Russian and you will find a little Tatar blood." Those Khans and hordes went all over in their conquests.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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08-06-2007, 12:25 AM
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#3
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Senior Member
Join Date: Oct 2005
Location: Alexandria, VA
Posts: 197
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More on Simian Line and Left handedness in breast cancer
Thanks, Mary, for sharing your line...smile...trust me, you are in good company and special thanks to Steph for doing investigative research and finding her hubby, like Patricia's has the straight line. Steph, if you or your hubby have kids, do they have the line?? I really don't know what it all means, but you have to admit it is fun to think about and takes our mind off less fun things... Sorry to read on the board tonight so many rough going side effects with some of the treatments...TCH, etc.
Special note to Sassy: Yes, my own family research confirms the 3 Reedy brothers came from Scotland and I was so happy thinking I had solved part of my geneology problem...until I learned that my maternal grandfather, who carried the Reedy name, did so via adoption. He was actually a Spencer by birth, whose father probably came from England and not Scotland as we once thought. Also, I went to Graham High school with the famous Eddie and Edith Hall twins...any relation to you??? We really do need to get together the next time I head down to Bluefield.
Anyhow, I was going over some of my other research and came across an article that does indicate left - handedness is more common in breast cancer patients (all types, not broken out by her-2) and I am pretty sure back in 2005 some of us discussed this and I had mentioned that I was left-handed from early childhood, but forced to switch in kindergarten although, if push comes to shove, I can still write passably well with left hand and tend to eat as the French do, with the left hand engaged.
So to Steph, I just also wanted to say that I think there could be some slight correlation between hormores in the womb environment and breast cancer. Also, recently, I saw an article that mentioned that even when all other genetic/social/economic factors are considered...there still seems to be a closer link to a woman's or a man's breast cancer via her or his mother's line and not the fathers...hmmmm.
Also, love the point about the Scotish/European/Native American connections...fascinating...
Love comments from any of you...keep them coming...
Gina
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08-06-2007, 02:36 AM
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#4
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Senior Member
Join Date: Sep 2005
Location: Grand Rapids, MI
Posts: 1,516
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Gina...
how interesting, I never gave much thought to it and while I knew I am part Clucas, I just found out that our family ACTUALLY came from the parish of Douglas on the Isle of Man (so I'm part Manx)...neato. Take care and BIG huggs.
Rhonda
__________________
Rhonda
Dx 2/1/05, Stage 1, 0 nodes, Grade 3, ER/PR-, HER2+ (3.16 Fish)
2/7/05, Partial Mastectomy
5/18/05 Finished 6 rounds of dose dense TEC (Taxotere, Epirubicin and Cytoxan)
8/1/05 Finished 33 rads
8/18/05 Started Herceptin, every 3 weeks for a year (last one 8/10/06)
2/1/13...8 year Cancerversary and I am "perfect" (at least where cancer is concerned;)
" And in the end, it's not the years in your life that count. It's the life in your years."- Abraham Lincoln
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