HonCode

Go Back   HER2 Support Group Forums > her2group
Register Gallery FAQ Members List Calendar Search Today's Posts Mark Forums Read

Reply
 
Thread Tools Display Modes
Old 07-27-2007, 09:22 PM   #1
michele u
Senior Member
 
michele u's Avatar
 
Join Date: Nov 2004
Location: Henderson, NE
Posts: 413
Dear Faith in Him,
Yes, i had 35 positive nodes! All the nodes they took out were positive. I'm going to be 4 years out next month, no recurrence. I'm getting my port taken out on monday. i was going to wait til 5 years but it is not working---so out it goes. Don't get caught up in the number game. Cancer does not follow direction very well! It does wants it's going to do--not what the dr's tell us. I had a year of Herceptin at dx, that's what is helping fighting this from coming back!! If you have any questions, please email me at mulmer@mainstaycomm.net
__________________
Michele Ulmer

dx: August 2003 stage 3b 35 pos nodes ER/PR neg Her+
4 AC 12 weekly taxol
one year Herceptin in trial
35 rad tx
vaccine trial Seattle
NED
michele u is offline   Reply With Quote
Old 07-28-2007, 12:31 AM   #2
michka
Senior Member
 
michka's Avatar
 
Join Date: Feb 2007
Location: Paris, France
Posts: 858
Red face

Hi everybody,
Speaking about positive lymph nodes I have a question that keeps filling my head and you may help me: I had neoadjuvant chemo before mastectomy. I was T2N1. The chemo shrunk the tumor from 3 cm to 1,2 cm. The pathology report of the axillary node dissection indicated 3 positive out of 5. I understand that the chemo worked partially which worries me a lot but why only 5 nodes? Why so little? Did the others disappear? Does this mean I will never know how many I had to start with? Did they not take out enough nodes?
I'll take all opinions about this.
Michka
__________________
08.2006 3 cm IDC Stage 2-3, HER2 3+ ER+90% PR 20%
FEC, Taxol+ Herceptin, Mastectomy, Radiation, Herceptin 1 year followed by Tykerb 1 year,Aromasin /Faslodex

12.2010 Mets to liver,Herceptin+Tykerb
03.2011 Liver resection ER+70% PR-
04.2011 Herceptin+Navelbine+750mg Tykerb
06.2011 Liver ned, Met to sternum. Added Zometa 09.2011 Cyberknife for sternum
11.2011 Pet clear. Stop Navelbine, continuing on Hercpetin+Tykerb+Aromasin
02.2012 Mets to lungs, nodes, liver
04.2012 TDM1, Ned in 07.2012
04.2015 Stop TDM1/Kadcyla, still Ned, liver problems
04.2016 Liver mets. Back on Kadcyla
08.2016 Kadcyla stopped working. mets to liver lungs bones
09.2016 Biopsy to liver. no more HER2, still ER+
09.2016 CMF Afinitor/Aromasin/ Xgeva.Met to eye muscle Cyberknife
01.2017 Gemzar/Carboplatin/ Ibrance/Faslodex then Taxotere
02.2017 30 micro mets to brain breathing getting worse and worse
04.2017 Liquid biopsy/CTC indicates HER2 again. Start Herceptin with Halaven
06.2017 all tumors shrunk 60% . more micro mets to brain (1mm mets) no symptoms
michka is offline   Reply With Quote
Old 07-28-2007, 08:16 PM   #3
michele u
Senior Member
 
michele u's Avatar
 
Join Date: Nov 2004
Location: Henderson, NE
Posts: 413
i think you are right about not really knowing for sure if you have neoadjuvant chemo. You could have had more, but as you can tell by this thread, that the rules don't always apply to lymph node numbers anyway, esp since Herceptin is around. You are going to be fine if you've had more lymph node involvement or not!!
__________________
Michele Ulmer

dx: August 2003 stage 3b 35 pos nodes ER/PR neg Her+
4 AC 12 weekly taxol
one year Herceptin in trial
35 rad tx
vaccine trial Seattle
NED
michele u is offline   Reply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump


All times are GMT -7. The time now is 10:21 PM.


Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2026, vBulletin Solutions, Inc.
Copyright HER2 Support Group 2007 - 2021
free webpage hit counter