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Hi Ladies
Just wanted to share my experience. I finished Herceptin in June (after one year of weekly injections) and was switched from Tamox to Arimidex in June (due to full menopause). Once the 'fog' of the AC wore off (have been done with AC since March I think) my husband noticed that I continued to have difficulties remembering things etc. Rather than getting better it has actually gotten worse. I had extensive testing done (neuro pshyc testing for memory etc) and it showed definite impairments in memory, the ability to learn and concentration. I also can look right at something and not see it. To me it is like I have ADD and a brain injury all rolled into one (and mild Alzheimers!!!). I used to be an avid reader but no longer read because I cant concentrate long enough and cannot remember what it is I have just read.
My neurologist tested for any other reasons and there doesnt seem to be any (thank goodness!). He feels as if it is from the chemo and says he has seen it before. He is not sure if it will get better, level off or become worse.
Having said all of that, I would still do the same treatment over again because after all I am here to tell the tale. My only wish is that oncologists would recognize this as a symptom rather than making you feel as if you are crazy, or 'just getting older' etc.
Bobbi
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Diagnosed 10-18-05 found during annual mamogram
Left mastectomy 10-27-05.
Sentinal node biopsy-node negative
IDC Grade 3 of 3
Tumor 2 cm margins clear
HER-2/neu 3+++
Er Pr +
Began chemo/AC every 3 weeks 12-6-05 followed by Taxol and weekly Hercpetin (Herceptin through June 2007)
Right prophlyactic mastectomy June 2006 with expanders. Due to have exchange surgery sometime end of May 2007.
Exchange surgery completed June 2007 with saline implants and nipples. Darned left implant is lopsided to the left due to the wrongly formed pocket and my wrongly formed chest wall!
Switched from Tamoxifen to Armidex in May due to menopause.
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