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Old 07-16-2007, 10:14 PM   #1
weezie1053
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Join Date: Nov 2006
Location: Bedford, Virginia
Posts: 134
Her2Neu - Definitions 101 (NED, etc.)

Reading others emails and signatures, I would like to show my ignorance and ask a couple of questions I have been refraining from asking until now.

First question: I have pretty much figured out NED implies "cancer free," but what does the abbreviation NED stand for?

Next, there are a lot of discussions regarding the IHC and Fish scores and/or readings. I have looked through copies of my physicians' typed notes dating back to my diagnosis and subsequent prognosis, and I cannot find any information regarding my IHC or Fish? Do these factors fluctuate or is this something related solely to your initial diagnosis? I told my Oncologist about this website, and he thinks it is great that I am wanting to learn as much as I can absorb, but I think my brain is in overload and I am having trouble following the IHC and the Fish lingo.

Thanks again. Talk to you gals soon. I have to get up and work in the a.m.

Louise
__________________
  • Diagnosis 06/06 - Stage II-A BC; BC was 2.5 cm, grade 2; ER/PR negative & HER-2/neu positive;
  • Mastectomy w/ reconstruction (implant) in 09/06;lymph nodes - negative;
  • AC/Cytoxin combo - 4 treatments (dose dense);
  • Taxol/Herceptin combo- 12 weekly treatments;
  • Completed chemo - 2/07; completed restruction 02/07; reduction of left breast.
  • BRCA 1 and 2 negative - 6/15/07;DX high risk for distant recurrence
  • MRI, 08/02/07 - NED
  • 1 year Anniversary - 09/07; completed Herceptin 11/07.
  • Mammo 02/14/08 - NED; MRI - 08/2008 - NED
  • 2 year Anniversary - 09/08
  • Mammo 02/09 - NED; MRI - 08/09 - NED
  • 3rd year Anniversary - 09/09
  • 5th Annivery - 09/2011 - NED
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