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Old 07-15-2007, 09:12 PM   #14
Andrea Barnett Budin
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Join Date: Oct 2005
Location: LAND OF YES! w/home in Boca Raton, Florida Orig from L.I., N.Y. Ever hovering IN THE NOW...
Posts: 1,904
Wink Mishka your pain is getting to me

I so want to help. I was just reading (Googling) on the Net about boosting my red blood count with supplements.

I came across this information and thought of you, Mishka -- B-12 (which I take 1500 sublingually each day) + FOLIC ACID (which I used to take and some how fell off my list, and I am reading it INVOLVED IN THE PRODUCTION MYELIN SHEATHS THAT PROTECT NERVES AND RED BLOOD CELL PRODUCTION are a combination used for both issues.

Also, ALPHA LIPOIC ACID (which I 300 AM and PM) is involved in nerve regulation, neurtalizes free radicals and can cross the blood brain barrier.

You may want to look into LYCOCAPS (Google).

I am now taking LYCOPOM, but the above sounds very worth your while.

Your nerves need to regenerate. I too had nerve damage from the severing of nerves in my armpit and upper arm (removing lymph nodes, cutting muscles, and so on). I had neuropathy. I did find getting the oxygen flowing to that area, and propping it helped. But my doc was explicit about choosing a trainer who is familiar specifically w/breast cancer patients recuperating and their specific problems. You can do more damage than good if you do not have the right rehab person, with training in unique area. I wish I could offer my exact directions in finding such a specialist, but my fantastic plastic man (who did my tram flap recon) had tapes in his office, along w/cards for just such a person. Perhaps that is a route you could follow in France, with a potential reconstruction expert who is in to follow up care to the nth degree.

Keep us up to date on your progress, and I have no doubt you will get a good handle on this as you appear to be intelligent, forceful, insightful and motivated by your suffering. None of us should be in such pain. It is not a necessary part of accepting your lot. You can find help. Keep on track. And consider the supplement route. I have an onc in NY who specializes in supplements, meditation, guided imagery, healing the whole person. His integrative oncological approach has helped keep me STABLE I have no doubt. He is a rare find, but surely there are others. The above supplements have a means of rectifying your problem substantially. That is what I pray for you... You deserve to feel joyful, harmonious and without pain. Stay on top of this till you find resolution. With loving energy sent your way, ANDI
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Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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