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Old 06-26-2007, 07:20 PM   #1
Peggy
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Join Date: Jun 2006
Location: East Texas
Posts: 40
removing port

I had my port removed in the Doctor's office...it was not a big deal. It was also in my upper arm...actually I've had two, the other was in my chest. Neither was a problem to remove. They numbed the area, waited a few minutes and took it out. The nurse actually did the procedure.

About veins...I've had them use my wrist, my hand, and my foot...none of which are great options...I have no idea where they go after the foot...

Peggy
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Stage IIIC
Diagnosed 5/05
FEC100 x4, Taxotere/Xeloda X4 (both with Herceptin)
Mastectomy, Rads x33 Herceptin X 9
3 Years NED!
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Old 06-27-2007, 10:35 AM   #2
janet11
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Location: Rowlett, TX
Posts: 138
It's always amazing to me how much USEFUL info I find out here. I just realized it's been 8 weeks since my port was accessed (am on 'hiatus' from Herceptin due to low LVEF). So I just phoned my onc nurse to ask 'shouldn't I have my port flushed?'.

If I had PLANNED to go off for an extended period, I'm sure they would have said something. But I've just been getting 3 week delays time after time (well, since May 1), so they probably never thought of telling me. Anyway, am asking. Thanks for bringing that up, Andi.
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Janet in Rowlett Texas

Dx July 2006 IDC 1.8cm, ER-/PR- HER2+ (FISH 7), KI67 High (60%) grade 3, TOPO II neg
Aug2006: lumpectomy, SNB (4 nodes neg), Stage 1
Jan 2007:
Finished 6 cycles of TCH (Taxotere, Carboplatin, Her ceptin). Then Herceptin every 3 weeks.
Feb 2007: Completed Radiation
May 2007: Stopped Herceptin due to low LVEF (49%)
July 2007: LVEF now 44% -- starting Coreg
May 2008: Heart NORMAL! Yippee.
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Old 06-27-2007, 02:20 PM   #3
Andrea Barnett Budin
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Location: LAND OF YES! w/home in Boca Raton, Florida Orig from L.I., N.Y. Ever hovering IN THE NOW...
Posts: 1,904
Wink We've Just Got To Be Proactive

Janet,

It makes my heart smile knowing we have each other's backs! It is stupefying to me how much trouble one can get in to just DOING AS TOLD, OR NOT...

Once a friend, Myrna, was taken off Taxol for a while, as she was having such a tough time. I said to her, But you still get the Herceptin, right? Uh. No. He didn't say anything. Well, my onc says NO MATTER WHAT YOU STILL GET YOUR HERCEPTIN. Maybe you should check w/your onc. Myrna thought about it over the weekend and called first thing Mon. AM and asked. Oh, no! That's a mistake. Yes, you should definitely come in for your Herceptin.

Another friend, Dorothy, told me she as on estrogen. I said, With progesterone, right? No. Do you still have your uterus? Yes. Well, it's my understanding that if you have your uterus and go on estrogen you must also take progesterone, for safety's sake. I have full confidence in my doc. I'm sure she's right. A week later Dorothy called me to say she thought about what I said and, after having taken estrogen for 6 mnths, she called her wonderful doc she trusted so to check. Sure enough -- oh, no. That's a mistake. You should definitely be taking progesterone too. I will call it in. Dorothy called to thank me.

I KNOW I am not a medical professional, but I listen to the experts on MSNBC, the Today Show, PBS, Larry King. I read. I do the best I can. I can only hope when a doc messes up I catch it -- or one of YOU WONDERFUL, WELL-INFORMED WARRIOR WOMEN will tell me!

I JUST LOVE THIS SITE! And all of you, my sweet Sister Souls... ANDI
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Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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Old 06-27-2007, 06:43 PM   #4
Becky
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Location: Stockton, NJ
Posts: 4,179
Chelee

I have never had a port even with over 2 years of IV treatments but they will find a vein if they need one - I assure you. Get rid of that port and get your body back. The cancer gods have taken enough as it is my dear girl.

Hugs and kisses to you
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Kind regards

Becky

Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia

NED 18 years!

Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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