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06-26-2007, 05:34 PM
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#1
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Senior Member
Join Date: Oct 2005
Location: LAND OF YES!
w/home in Boca Raton, Florida
Orig from L.I., N.Y.
Ever hovering IN THE NOW...
Posts: 1,904
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Fat Necrosis
Don't panic. I too have heard of fat necrosis. Scar tissue maybe? See my story in my signature. It is my understanding that if you are resistent to Herceptin -- Tykerb was made for you. + there is some bld test now that shows if you are going to be a poor Herceptin recipient. I went on in '98 before they had that. Obviously, it is my magic bullet. But I attended a lecture a few wks ago where they mentioned the Tykerb working for those who weren't responding to Herceptin.
Don't jump the gun. No one has said Herceptin is not for you. It is so hard to be vigilant and proactive and involved and not become crazed, but that is what you must do. Please let us know how this goes. You have my prayers for a simple answer and the joy of being STABLE. With loving energy... ANDI
__________________
Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...
'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...
Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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06-26-2007, 08:06 PM
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#2
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Senior Member
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
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I have this although it is smaller than yours (but maybe not) and was fat and glandular tissue located about 1.5 inches from my lumpectomy scar. It was a bit scary but for some reason, I felt it would be okay. Keep the faith. This can all be so hard.
Also, if this is a local recurrence for you, it does NOT mean that the Herceptin isn't working. Chemo and Herceptin (or any IV drug) has a very difficult time penetrating scar tissue. The Herceptin is probably doing its job everywhere it can get to.
Big hug to you.
__________________
Kind regards
Becky
Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia
NED 18 years!
Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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06-28-2007, 09:23 AM
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#3
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Senior Member
Join Date: Nov 2006
Location: West Virginia
Posts: 105
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The fact that this just showed up out of nowhere has me in a bit of a panic. It is absolutely crazy how in one day I went from enrolling in classes, contemplating a job transfer, house hunting, and looking forward to reconstruction this fall to a dead stand-still, afraid to make any decisions based on this lumpy thing under my arm. Knowing this can and HAS happened to someone else and turned out to be benign gives me some reassurance that it could be something other than a recurrence. I guess what I yet have to learn is that life will go on and so will I, no matter what may be thrown in my path. Thank you both for the positive thoughts. I certainly needed them in a bad way.
Steph C
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06-28-2007, 09:39 AM
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#4
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Senior Member
Join Date: Jun 2006
Location: San Antonio, TX
Posts: 2,357
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Steph, keep those house hunting, job search dreams alive. They give us hope, determination, courage and that special sparkle. I'm pulling for you!
ma
__________________
MA in TX.
Grateful for each and every day....
Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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06-28-2007, 10:14 AM
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#5
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Senior Member
Join Date: Oct 2005
Location: LAND OF YES!
w/home in Boca Raton, Florida
Orig from L.I., N.Y.
Ever hovering IN THE NOW...
Posts: 1,904
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Living As If What You Want Already Exists
Yes, Steph. I'm a firm believer in making your INTENTIONS clear to your body and to the Universe. Your vivid EXPECTATIONS translate into mental chatter and whisperings, which induce coordinating pictures. YOUR BODY HEARS EVERY THING YOU SAY AND WHISPER and takes it all very seriously. So you go right on planning, AS IF what you truly want is on its way, coming directly to you. Live AS IF what you dream of ALREADY EXISTS! With love... ANDI 
__________________
Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...
'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...
Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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