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Old 06-21-2007, 07:43 PM   #1
Liz J.
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Dear Shiela,

Please accept my sympathy on the loss of your best friend. I can relate to your noting how she reacted to your trying to clean her mouth yesterday. I do recall your saying how you would do this for her all the time. I have experienced similar situations with both my Dad and an Aunt just before they passed on. I almost believe they know they are leaving and sort of want us to get PO'd at them or something so that maybe we won't hurt as bad. Of course, this is just my reasoning, but I have listened to many people who have had these experiences. The old expression (you always hurt the one you love) could apply. I don't mean to upset you with this. I hope this will make you feel better. They sort of try to push us away in the hopes it will ease things for us. Just know that she appreciated everything you did for her and she is looking down on you as your treatments continue. I am thankful that your nodes are shrinking.

Stay strong,

With love,

Liz J.
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Old 06-21-2007, 07:57 PM   #2
rinaina
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Sheila, please accept my heartfelt sympathy and condolences. I know how close you were to your dearly departed friend and I am at least relieved to know that she is not suffering and went peacefully and not in pain. My thoughts are with you at this difficult time in your life. Glad to hear about the nodes. I continue to pray for you to have excellent results from this treatment. Amen to all you said about the wonderful women on here who have become friends and how cool that you and Donna met up....but next time do it at a more desirable location, will ya!
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~Rina~
Dx:3/06 had a lumpectomy April 19, 2006
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
AC 4 dense doses
34 radiation treatments including booster doses
receiving herceptin every 3 weeks since late August 2006 for 12 months
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Old 06-22-2007, 04:16 AM   #3
Sheila
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Thank you all for all the thoughts and prayers....I am so very happy and lucky to have had her as a best friend for 40 years in my life....and although there is a void, I don't have to watch her suffer.....
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is fighting some kind of battle."



Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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Old 06-22-2007, 05:43 AM   #4
kimber
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Sheila - Bittersweet does say it all. Mary Jo is finally free from the suffering.

I am so happy, no, make that estatic about your response to treatment!!!!! Your strength and attitude really does inspire me.

You go girl! -kim
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dx 5-05 @42 years old
IDC stage IIA
ER+ (100%) ER+ (75%) HER2+
double mastectomy
4DD AC - 16 weekly Taxol
6 months Herceptin - stopped due to MUGA
35 chest wall rads
Tamoxifen
Lat flap with silicone implant reconstruction on left side due to radiation. "Normal" silicone on right. Finished all reconstruction 6-07!!!
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Old 06-22-2007, 06:14 AM   #5
Joy
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just more thoughts coming your way. I'm so very sorry Sheila.

I'm very happy about the shrinking nodes. Keep up the great work!
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with love and gratitude,
joy

dx stage I 2/2000*er/pr+; her- per IHC*lumpectomy*4 rounds A/C*30 rads*tamoxifen*dx stage 4 5/2002*huge mets to liver*tiny mets to lungs*stopped tamoxifen*5/02 taxotere/xeloda*her 2 checked with FiSH-her2+++herceptin *2/03 stopped chemo femara w/herceptin*zolodex*04 switched to aromasin w/herceptin*05 high estrogen tx*11/05taxol/carbo*7/06 stopped chemo; megace/herceptin*9/06navelbine/herceptin*5/07tykerb/xeloda great response*4/08 progression in liver; ooph/ faslodex /herceptin
6/08 began Herceptin DM-1
9/08 progression
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Old 06-22-2007, 06:25 AM   #6
Shell
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Sheila-

Thank you for sharing about your friend, and your aptly named title, also sharing with us the progress you are making. You are in our thoughts and prayers...

Regards,
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Shell

init diag 3/17/03-stage IIIC
ER-/PR-/HER2+++
CET x4 neo-adjuvant
lump & SNB 8/03
CET x2
radiation and herceptin/navelbine 11-03-1/04
1st reoccur to lymph nodes 8/04
complete axillary dissection 12/04
herceptin/taxotere til progression (lungs) 3/05
xeloda w/out lapatinib trial 6/05
lapatinib/tykerb added 4/06
ended trial 8/06 due to progression
doxil / avastin 11/06-12/06 - wasn't working
navelbine/herceptin/avastin 12/06/3/07 - progression
gemzar/carboplatin/tykerb 4/07
mri shows extensive mets to bone in pelvic area 6/07
switched to abraxane (3 on/1 off) + tykerb 6/07
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