Tykerb/Xeloda in England

[Daisypink]

Hi odette and Michelle

many thanks for your replies... glad to hear you are tolerating the drugs well..

its so nice to be able to talk to others that are on this combination of drugs.. here in england it is very rare as i have already said.. tykerb is not licenced..

i'll keep in mind the tips you have given me so far and keep you posted on how i'm doing..

much love across the miles

jakki
xx

[Shell]

Jakki-

I was in the clinical trial for xeloda/tykerb, and had the H/F syndrome as well as diarhhea. A great website is www.xeloda.com, where they have a treatment diary, that lets you mark down your symptoms - as you are taking pills, you probably won't see your onc as often, and believe me the days start to run together - it was very helpful for me...

Kind regards,

[Daisypink]

Hi

Just an update on me over here in England..

I started taking the Xeloda - 3300mg a day and Tykerb 1250mg a day.. this started last friday.. so far so good..

i have only experienced a little nausea, this is usually a couple of hours after ive taken the morning pills.. i'm very tired by mid afternoon, my recon seems to be sore and tender (that happened with other chemos) but apart from that all is ok.. would the side effects have kicked in by now?? i was expecting worse than this..(not that i want worse!)

dare i say it..this seems by far the easiest of chemos ive had..

I have to be re scanned in 6 weeks to see if my tumours have shrunk in my lungs and my back..

thanks to those who have replied so far....

love to you and keep fighting the fight!

Jakki
xxxxx