LVEF drop - off herceptin - CoQ10 and?????

[janet11]

One time I actually had the Herceptin scheduled 2 hours after the MUGA. When they got the results (lvef 49), they came in and disconnected the IV and threw it away (*sigh*). But that's about as 'wait until the last minute' as it can get (*laugh*).

[Donna]

Hi Flori,

I did check out Dr. Conklin and also the Douglas Labs CoQ10 - and I ordered it! Sounds like the best one out there. Can I ask, does Dr. Conklin recommend all the supplements you take from Douglas Labs or just this one? I will still check out getting a phone consult, but I was just curious - y'know - TODAY. :-) Not the patient type.

Have a great day!

Donna

[janet11]

Quick update. I was on Herceptin for 7 months when my LVEF dropped below 50% (just to 49%) in May. 3 weeks later, it was 48%. Now I just got my results from a MUGA in July and it has dropped to 44% (with the right side being affected too for the first time). So I'm permanently off Herceptin and will have a MUGA in 3 more months hoping that it's finally going UP instead of down.

The good thing: I've called my surgeon's office to schedule getting my port removed. Poke a fork in me, I'm DONE! (*grin*)

Janet