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06-03-2007, 10:47 AM
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#1
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Senior Member
Join Date: Oct 2005
Location: LAND OF YES!
w/home in Boca Raton, Florida
Orig from L.I., N.Y.
Ever hovering IN THE NOW...
Posts: 1,904
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CONQUER THE FEAR & CONQUER THE DISEASE
You can quote me on that. Just want to say I am so thoroughly impressed w/all you ladies on this board. You are so well-informed, ask great questions, give intelligent responses and have well-honed Attitude, y'all... Your proactive Spirit is admirable. Hard to find in most places. I'm the one in the chemo room trying to do what this site does for me. Thank you all. You're are gems. Irreplaceable and much loved. Sending happy, healthy energy your way, at all times... ANDI
__________________
Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...
'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...
Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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06-03-2007, 07:52 PM
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#2
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Senior Member
Join Date: Nov 2004
Location: Henderson, NE
Posts: 413
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Andi, i want to talk with you more about the spiritual side of cancer/life. I have lots of stories to tell! It's getting late and i will get back later. Just to give you a idea of what happens in my "world" Last night i was at my mom's house spending the weekend with her. I was taking my dog Tinkerbell out at midnight and i was looking at a little deer lawn ornament she had by her tree, i thought to myselft, someone is going to steal that. Don't know why i thought that, but today she told me someone stole it over night!! I know, weird.
__________________
Michele Ulmer
dx: August 2003 stage 3b 35 pos nodes ER/PR neg Her+
4 AC 12 weekly taxol
one year Herceptin in trial
35 rad tx
vaccine trial Seattle
NED
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06-03-2007, 08:01 PM
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#3
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Senior Member
Join Date: Oct 2005
Location: LAND OF YES!
w/home in Boca Raton, Florida
Orig from L.I., N.Y.
Ever hovering IN THE NOW...
Posts: 1,904
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Always Trust Your Inner Voice!
Your instincts told you what your Spirit KNEW would happen! I saw a woman on the news about a yr ago. She was going to work. Walked to bus. Stood in line. Suddenly had this awful feeling about her daughter who was waiting at the bus stop about a block from their house. She was late for work, but stopped, turned around and RAN back to her house. Just as she arrived she saw her daughter being grabbed into a strange man's car. She ran to her side. Grabbed her ankles and was pulling as the man started tugging to get her in to the car. The woman screamed loud. A male neighbor came out to see what was going on. The driver then panicked and let go of the child! SOMETHING deep inside her told her to run, to save her child, and against all "reason", being late for work, she followed her heart. And she did indeed save her child from God knows what.
Your Soul knows more than you can possibly begin to imagine, somehow. It speaks to you through your Inner Voice. It wants what you want. It is wise beyond knowledge.
Your "deer" story is yet another example. Start noticing the connection between "a feeling" and what actually transpires. Inexplicably.
Yes, I would love to talk to you more on this -- anytime.
Sending loving energy... ANDI
__________________
Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...
'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...
Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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06-03-2007, 08:16 PM
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#4
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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Michele,
Wishing you the best of luck with your Tykerb treatment. Did you have your recurrance after herceptin? Also, do you know if anyone else is taking Tykerb
off label ....I only know of those taking Tykerb in the trial.
Once again wishing you the best and I will keep you in my prayers to remain
NED...
Hugs,
Jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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