| Herceptin / Tykerb Share your experiences or ask questions about Herceptin or Tykerb |
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05-31-2007, 08:17 PM
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#1
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Senior Member
Join Date: May 2006
Location: California
Posts: 668
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Glad to hear such promising news!!
Esther: Im so happy for you...Thank you for sharing. Perhaps that will be my next treatment plan. See onc on June 5; hope navelbine+herceptin is working. Pray for me.. (Second time around)
Celebrate....tonite?
__________________
1994 - rt brst, .lump, underarm node dissection,chemo+rad 1.2 cms, Grade 3.
28 nodes neg
Er,Pr, Positive HER2 status unknown
2003- Recur to rt lung.July 16 ( B-Day!)
Her2+++ Er,Pr, Negative
2003 - Aug04--Navelbine + Herceptin
2004- 2007--NED - Herceptin, only
2007 Feb-April Xeloda added to hereceptin
2007-May Back on Navelbine+Herceptin
2008-Feb-Mar 15 Ses Rad to Rt. Lung
2008- Oc 17 Add Tykerb to Herceptin
2009- June-- Discont Tykerb
2009 July 7--Current Taxol + Herceptin
2009 Dec--Discontinued treatment due to progression. Looking into cyberknife.
2010-Aug Accepted to TDM1, no SE, except liver count went up.
2010-2011 September got kicked out of the trial, due to a small spot found on lung.
2011- 2012 September thru early 2013 on Herceptin
2013- March Bone density shows small spot on 5th rib.
2013 - April 4th appt with onc. will post after discussing course of treatment.
2013-March-April Cyber knife to brain and radiation to rib. Chest --base line before chemo-CT-Scan stable for lung issue. CA2729 Normal.
2013 April Herceptin- TDMI
2013 Sept Herceptin + Perjeta . CA2729 within normal range. Brain and Pet scans October 31st. will post results.
2013 October Brain MRI- mixed response. Will see Onc/rad on Halloween.
2013 October/November Brain-MRI nothing new. Repeat MRI next year in May.
2013 December Continue Herceptin and Perjeta. Stable at the moment.
2014 February Brain MRI -clear!
2014 January Added Taxotere to Perjeta+Herceptin.
2014 March Stopped chemo-chest ct-scan next.
2014- March Scans shows tumor's larger, CA2729 higher. Discontinue Herceptin.
2014 April Perjeta+ Halaven
2014 April CA2729 went down 60 points after one cycle. Cough does not want to go away.
2014 June Continue on Perjeta + Halaven-- no more cough. Stable
2014 June Back on Herceptin + abraxane
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06-01-2007, 09:40 AM
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#2
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Senior Member
Join Date: Feb 2006
Location: South Florida
Posts: 131
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I am so Happy for you Esther and Brenda. Count me in too!
My recent scans show that I am responding to the Tykerb and Xeloda!
My tumor markers have plummeted and continue to fall after 2 months.
I think this line has been the best for me so far in terms of fast response.
I am thankful for the Tykerb!
__________________
Lala
DX Fall05 Stage 4 er+ pr+ her2+ liver and bone mets
DX Fall06 Brain mets, Brain mets gone Spring 2007
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06-01-2007, 03:24 PM
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#3
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Senior Member
Join Date: Jun 2006
Location: South Florida
Posts: 477
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Esther,
That is GREAT news! Thank you for sharing.
Love, Hope, and Peace,
Carolyns
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06-01-2007, 05:23 PM
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#4
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Senior Member
Join Date: Aug 2001
Location: Oregon
Posts: 1,756
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Yeah EVERYBODY! We all seem to be experiencing the miracle  My onc doesn't use tumor markers anymore as they no longer showed any change in response to obvious progression, so since my mets are quite conviently located where we can feel them, we go by that backed by scans when appropriate. EVERYTHING'S SHRINKING!
<3 Lolly
__________________
Sept.'99 - Dx.Stage IIIB, IDC ER/PR-, HER2+++ by IHC, confirmed '04 by FISH. Left MRM, AC x's 4, Taxol x's 4, 33 Rads, finishing Tx May 2000. Jan.'01 - local/regional recurrence, Stage IV. Herceptin/Navelbine weekly till NED August 2001, then maintenance Herceptin. Right Mast. April 2002. Local/Regional recurrence April '04, Herceptin plus/minus chemo until May '07. Gemzar added from Feb.'07-April '07; Tykerb/Abraxane until August '07, back on Herceptin plus Taxotere and Xeloda Sept. '07. Stopped T/X Nov. '07, stopped Herceptin Dec. '07, started Avastin/Taxol/Carboplatin Dec. '07. Progression in chest skin, stopped TAC March '03, started radiation.
Herceptin has served as the "Backbone" of my treatment strategy for over 6 years, giving me great quality of life. In 2005, I was privileged to participate in the University of Washington/Seattle HER2 Vaccine Trial.
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06-02-2007, 08:16 AM
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#5
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Senior Member
Join Date: Jun 2006
Location: South Florida
Posts: 477
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Lolly,
That is GREAT news! Have a fantastic weekend!
Love, Hope, and Peace,
Carolyns
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06-03-2007, 06:12 PM
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#6
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Senior Member
Join Date: Sep 2005
Location: Philadelphia
Posts: 301
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Esther-
What fantastic news - always ironic about the side-affects, too... Continued success with things,
Regards,
__________________
Shell
init diag 3/17/03-stage IIIC
ER-/PR-/HER2+++
CET x4 neo-adjuvant
lump & SNB 8/03
CET x2
radiation and herceptin/navelbine 11-03-1/04
1st reoccur to lymph nodes 8/04
complete axillary dissection 12/04
herceptin/taxotere til progression (lungs) 3/05
xeloda w/out lapatinib trial 6/05
lapatinib/tykerb added 4/06
ended trial 8/06 due to progression
doxil / avastin 11/06-12/06 - wasn't working
navelbine/herceptin/avastin 12/06/3/07 - progression
gemzar/carboplatin/tykerb 4/07
mri shows extensive mets to bone in pelvic area 6/07
switched to abraxane (3 on/1 off) + tykerb 6/07
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06-06-2007, 01:07 PM
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#7
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Deceased
Join Date: Oct 2005
Location: Chadds Ford, Pa
Posts: 206
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Esther,
So glad to hear you are doing well. Today I finish my first round of Xeloda and these past two weeks have been a breeze. I won't get blood work till next week and scans in July so I am very encouraged to hear it working so well for you. Keep us posted on your progress.
Donna
__________________
Donna
Diagnosed 2/04 - Invasive ductal - no clean margins
node negative - er+pr+, her2++
Mastectomy 4/04 - 4 rounds AC
9/05 - mets to liver treated with carbo/ixabipelone/herceptin
3/06 - complete remission
9/06 - new liver mets, starting Taxotere/Herceptin
1/07 -Liver mets stable, staying on Herceptin
5/07 - Liver, lung progression - starting T/X
12/07 - Liver, lung progression - starting weekly Navilbene/Herceptin
4/08 - Liver progression - started Abraxane, Carbo, Tykerb and Herceptin
7/08 - Liver Progression - started Gemzar, Avastin and Tykerb
10/08 - Liver progression - starting Doxil
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