| Herceptin / Tykerb Share your experiences or ask questions about Herceptin or Tykerb |
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05-17-2007, 12:16 PM
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#1
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Senior Member
Join Date: Jul 2006
Location: Coconut Grove, Florida
Posts: 25
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Hi Carolyns,
I am restarting tykerb tomorrow and restarting herceptin (after 8 1/2 years on it with various chemos) next Wednesday. I'm glad to hear that your side effects aren't too bad so far. I was on tykerb last month for 10 days and once the onc gave me my 5th dose of taxotere, I was a total mess. So I stopped everything for 3 weeks and now we're starting up again now that I have recovered. But NO TAXOTERE. I'm done with that. I'm nervous about the diarrhea starting again but I am determined to make this work! Wish me luck! I'll keep you all posted on my progress.
__________________
Debbie
8/96 - Diagnosed Stage I - 1.8 cm tumor in left breast
0+ lymph nodes, ER+/PR-
Lumpectomy, radiation, CMF x 9, Tamoxifen
6/99 - Stage IV - 1.2 cm tumor in left lung, HER2 NEU +
VATS thoracotomy, Herceptin and Arimidex
2000 - Bone mets to left scapula and right ribs
Herceptin; Taxol x 9, Zometa
2/2001- Rt. lung - 6 mm tumor
Mini-thoracotomy
2/2001 - 12/2006
Xeloda-10 months, Navelbine-10 months,
Gemzar, Abraxane, Taxol/Carboplatin x 10, Aromasin, Faslodex,
Zoladex, Tamoxifen
2001 - Radiation to left scapula for pain managenent
9/2004 CyberKnife to right rib
7/2006 - Pleural effusion - thoracentesis performed twice
1/2007 - Pleuradesis and Taxotere x 5
4/2007 - Stopped Herceptin after 8 years (weekly).
Started Tykerb with Taxotere but stopped after 10 days
5/2007 - Stopped Taxotere, restarted Tykerb and Herceptin
Currently on Tykerb, Herceptin, Zometa
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05-17-2007, 12:26 PM
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#2
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Senior Member
Join Date: Jun 2006
Location: South Florida
Posts: 477
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Muldoonmom,
I wish you luck and have my fingers and toes crossed that you have very mild side effects. I am on day 8 and still have the same "system" as before and the same side effects. I wake up an hour early take my Tykerb and then go back to sleep. Wake up make a potty trip, eat breakfast, another potty trip and then off to work I go....I know too much information.
So far so good. I wish you luck!
Love, Hope, and Peace,
Carolyn
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05-17-2007, 01:05 PM
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#3
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Senior Member
Join Date: Jul 2006
Location: Coconut Grove, Florida
Posts: 25
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Carolyn,
Thanks for your response! I'll let you know how it goes.
Have you developed any of the facial rash? I also had that and I hope it doesn't return.
__________________
Debbie
8/96 - Diagnosed Stage I - 1.8 cm tumor in left breast
0+ lymph nodes, ER+/PR-
Lumpectomy, radiation, CMF x 9, Tamoxifen
6/99 - Stage IV - 1.2 cm tumor in left lung, HER2 NEU +
VATS thoracotomy, Herceptin and Arimidex
2000 - Bone mets to left scapula and right ribs
Herceptin; Taxol x 9, Zometa
2/2001- Rt. lung - 6 mm tumor
Mini-thoracotomy
2/2001 - 12/2006
Xeloda-10 months, Navelbine-10 months,
Gemzar, Abraxane, Taxol/Carboplatin x 10, Aromasin, Faslodex,
Zoladex, Tamoxifen
2001 - Radiation to left scapula for pain managenent
9/2004 CyberKnife to right rib
7/2006 - Pleural effusion - thoracentesis performed twice
1/2007 - Pleuradesis and Taxotere x 5
4/2007 - Stopped Herceptin after 8 years (weekly).
Started Tykerb with Taxotere but stopped after 10 days
5/2007 - Stopped Taxotere, restarted Tykerb and Herceptin
Currently on Tykerb, Herceptin, Zometa
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05-17-2007, 03:23 PM
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#4
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Senior Member
Join Date: Jun 2006
Location: South Florida
Posts: 477
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Hi Debbie,
No, not yet, knock wood.
Best wishes!
Carolyn
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07-11-2007, 11:03 AM
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#5
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Senior Member
Join Date: Dec 2005
Posts: 148
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Hi Carolyn,
Are you stage 3 or stage 4. I am just curious because you are on both Herceptin and Tykerb.
What is the frequency of Herceptin you are taking? Is it once every 3 weeks?
Regards,
Rupali
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