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Joy - I'm so sorry to hear you are still getting the run around. I can certainly understand your nervousness about not being on anything at the moment. What are your onc's feelings about this? Is your copay for the Xeloda high, too, or could you maybe do as some of the others on this site and start the Xeloda now and the Tykerb when you can get things straightened out? Also, do you think your stomach issues could be nerves from the stress of all of this? I wish there was something I could do to get the ball rolling on the Tykerb for you. You are in my thoughts and prayers that your CT will come back with good results and you will get your Tykerb thing straighted out soon.
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Andi
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Stage IIIC, 17 of 20 Nodes +, E+, Her2+++
Diagnosed 6/30/05
Lumpectomy 7/13/05
Dose Dense A/C x 4
Weekly Taxol + Herceptin x 12
Remainder of year Herceptin Every 3 weeks (completes 9/13/06)
Radiation completed 2/28/06
Currently on Tamoxifen
Dec 06 - Pleural effusion treated with pleurodesis
Now er/pr-, her2++
1/07 started weekly Navelbine plus Herceptin
Discontinued Tamoxifen
4/27/07 CTshowed progression
5/01/07 Began Tykerb/Xeloda + Zometa
5/22/07 Stopped treatment due to great progression
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