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Bailey - I've taken it for 2 days now. The first day I took the Tykerb when I received the shipment (I wanted to get started right away). Then, I decided the evening thing made sense, so I switched and took it before bedtime last night. I didn't have any trouble sleeping, but I did have a watery stool when I got up this am. My onc told me to call if that happened and wait until I get further instructions before I take any more . I put the call in this am and am still waiting for a call back. Other than the bowel issues, I have been tired. So far my hands and feet are ok. I am on a real high dose of Xeloda right now (1650mg twice a day) so I am sure that will be adjusted down based on what others on this site have said. I hope things go well with you. Let's hope our cancers take a big hit from this cocktail! Let us know when you get started how you are doing.
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Andi
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Stage IIIC, 17 of 20 Nodes +, E+, Her2+++
Diagnosed 6/30/05
Lumpectomy 7/13/05
Dose Dense A/C x 4
Weekly Taxol + Herceptin x 12
Remainder of year Herceptin Every 3 weeks (completes 9/13/06)
Radiation completed 2/28/06
Currently on Tamoxifen
Dec 06 - Pleural effusion treated with pleurodesis
Now er/pr-, her2++
1/07 started weekly Navelbine plus Herceptin
Discontinued Tamoxifen
4/27/07 CTshowed progression
5/01/07 Began Tykerb/Xeloda + Zometa
5/22/07 Stopped treatment due to great progression
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