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Old 04-23-2007, 02:21 PM   #1
Erin
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Posts: 108
Thanks for the feedback :-)

Thank you all so much for your thoughts and comments. I was starting to feel better but I had already called the onc and that sets a whole chain of events in motion.

Onc sent me to urgent care to check out my blood pressure, which was low, and went lower when standing. My heart rate climbed quite a bit each time I stood as well, so they are thinking I am a little dehydrated. Promised to keep drinking like a horse, so they let me go without an IV. I had been having a little problem with diarrehea over the last 24hours...but I guess it was more draining than I though.

Any truth to the rumor that the 4th round is the worst? That is something I have been hearing...hope it is true!

Thanks again for the support :-)
__________________
Age 50, premenopausal
Dx 1/2/07 DCIS/IDC
Lumpectomy 1/4/07 1.1cm tumor
SNB 3 nodes clear
Stage 1, Grade 2, HER2+++ (FISH 6.8)
ER + / PR +
TCH, 6 rounds, finished 6/1/07!!!
Herceptin to continue for 1 year
36 rads finished 8/22/07
Port out 8/27/07
Switched to Herceptin weekly for joint pain
Ooph 11/13/07
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Old 04-23-2007, 03:08 PM   #2
StephN
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Location: Misty woods of WA State
Posts: 4,128
Red face Reminds me of ...

... the time when I passed out COLD at the breakfast table on my hubby's birthday on a Sunday. I was fighting mets and was getting both red and white blood cell support shots. But, the trial doses were high and needed reducing.

I awoke with the firemen trying to rouse me in my living room. I had really gone out for the time it took for my hubby to realize I was out cold, call the 911 and for the aid car to arrive. In the emergency, I was given an IV for hydration, they ran some quick labs and sent me to radiology for a brain CT to check for mets or seizure evidence.

The CT was clean (I was fearing brain mets!), and the labs showed a very low white count. SO low that the docs on duty decided to send me home rather than have me spend the night on the 7th floor with the other cancer patients! Like I was more at risk for getting a bad bug there, then going home to the bugs my body was used to. I was glad to be released with proviso that I get another blood test the next day at the cancer center. That test showed a marked increase in my white count as the neupogen drug just needed that much time to get back on track.

There were other times that I did feel dizzy and light headed, so that is NOT unusual and you are not alone on that. I am so happy you were able to go home. A lower blood pressure and increased heart rate plagued me all during my chemos. They are physiological side effects of your body trying to stay oxygenated while the red count is lowered. This also shall pass!
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"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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Old 04-23-2007, 03:25 PM   #3
suzan w
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Wink

So sorry that you are feeling crummy. I had a terrible time with A/C...every side effect in the book and then some. After the second infusion I developed a high fever and couldn't move. Ended up in the ER. Long story...bad ER (NOT the hospital where I was being treated...I am a ferry ride away from my doc and hospital and, of course it was in the middle of the night...Halloween eve...me, bald...looking like sh*%...scared one little girl there half to death! funny now, not at the time!)They sent me home after 4 hours of doing nothing. I went to my reg doctor the next AM and she was horrified that they had done nothing. She put me on heavy duty antibiotics and I skipped my next chemo. I was ready to call the chemo quits after that but did 2 more rounds, each one getting sicker and sicker. Eventually called it quits after 4 rounds...instead of 6. Looking back on it, I think I went into chemo with a slight infection of some sort that just got worse and worse. I am glad that I did the chemo, and have no doubt that I did the right thing by cutting it short. Hope you are feeling better and just know that some day you will look back on all of this and say, "Phew, what a long strange trip it's been...!!!"
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Suzan W.
age 54 at diagnosis
5/05 suspicious mammogram-left breast
5/05 biopsy-invasive lobular carcinoma with LCIS,8mm tumor,stage 1 grade 2, ER+ PR+ Her2+++
6/14/05 bilateral mastectomy, node neg. all scans neg.
Oncotype DX-high risk
8/05-10/05 4 rounds A/C
10/05 -10/06 1 yr. herceptin
arimidex-5 years
2/14/08 started daily self administered injections..FORTEO for severe osteoporosis
7/28/09 BRCA 1 negative BRCA2 POSITIVE
8/17/09 prophylactic salpingo-oophorectomy
10/15/10 last FORTEOinjection
RECLAST infusion(ostoeporosis)
6/14/10 5 year cancerversary!
8/2010-18%increase in bone density!
no further treatments
Oncologist says, "Go do the Happy Dance"
I say,"What a long strange trip its been"
'One day at a time'
6-14-2015. 10 YEAR CANCERVERSARY!
7-16 to 9-16. Extensive (and expensive) dental work done to save teeth. Damage from osteoporosis and chemo and long term bisphosphonate use
6-14-16. 11 YEAR CANCERVERSARY!!
7-20-16 Prolia injection for severe osteoporosis
2 days later, massive hive outbreak. This led to an eventual dx of Chronic Ideopathic Urticaria, an auto-immune disease from HELL.
6-14-17 12 YEAR CANCERVERSARY!!
still suffering from CIU. 4 hospitilizations in the past year

as of today, 10-31-17 in remission from CIU and still, CANCER FREE!!!
6-14-18 13 YEAR CANCERVERSARY!! NED!!
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Old 04-23-2007, 05:02 PM   #4
Jean
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Location: New Jersey
Posts: 3,154
Hi Erin,

Glad that your onc responded and you have everything under control once again. In regards to the rumor of the 4th being the worst....I found for me
that the 3rd trt. was the worst mid-way through....I was a bit concerned
about the 4th treatment. Turned out that it was not any worse than #3. As a matter of fact the 3rd was the hardest for me. The treatment is accumulative in nature and your wbc / rbc can take a nose dive.. I did have to have the shots for this.

Take a deep breath your rounding the bend and almost at the finish line. I realize it seems that this will never end - but it will. Wishing you the best.

Hugs,
jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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Old 04-23-2007, 08:55 PM   #5
caya
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Hi Erin

In Canada alot of us do - FEC ( 3 rounds), then Taxotere ( 3 rounds). I had my second of the 3 Taxotere last Thursday, and yesterday - Sunday, I was very dizzy, beyond exhaustion, very out of it. Hit me out of nowhere, I was so weak - it was me, my couch and the TV. I was also a bit nervous, but today I am much better, partly due I think to drinking more, although I am practically gagging on the liquid as my tastebuds are GONE, everything I can taste, especially water, is disgusting.

It's not easy, but we will get through it. My last chemo is May 10th (yippee!!), then my onc. wants me to have a month's break, have another MUGA and start Herceptin on June 7th.

Hope you feel better soon.

Caya
__________________
ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08

Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
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Old 04-24-2007, 04:05 AM   #6
LisaElder1972
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Passing Out

So sorry that you are having a rough time.I had 4 DD AC and 4 DD Taxotere and I passed out on Halloween twice.Once on the concrete and again in a wheelchair once I got to the ER.My knee was cut bad and such a big chunk of it was gone that they couldn't even sew it up.I fell again on the same knee,opposite side 2 weeks ago,I am gonna need a new knee soon lol.I know the chemo just made me so weak I had to have someone with me 24/7.You will be done pretty soon and you will slowly get stronger.


Lisa
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