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Old 04-23-2007, 07:31 AM   #1
Sandy H
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Join Date: Feb 2005
Location: Norridgewock, Maine
Posts: 778
I am not sure I agree with the immunity with chemo drugs. Why do we have reactions to the drugs? I had two reactions to carboplatin and was told my body was telling me it has had enough and wants no more. I also got very ill from taking tykerb and my oncologist said your body has had enough and wants no more so, "your done with that drug". I guess, its how do we define immunity. I agree with the cancer being tricky and out doing these drugs. Always, so many questions here and how do you answer them? Glad I am not a doctor! Just my thought here. Wishing you all well. hugs, Sandy
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Dx. 03/01, Rt. IBC
AC/Taxatere
Rt. MRM-with graft Lt. simple
5 rads-skin mets
Herceptin, taxol, carboplatin (taxol seem to be the magic drug)
Navelbine & xeloda (did not work)
topical miltex for skin mets
Tykerb/xeloda
thoracentesis x 2 left lung fluid shows cancer cells
Port removal (4 years) with power port replacement
Doxil
Updated 05-07 Scans show no bone or organ involvement we shall see!




I shall not pass this way again. Any good I can do or any kindness that I can show let me not defer or neglect it for I shall not pass this way again.
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Old 04-23-2007, 08:40 PM   #2
michele u
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Join Date: Nov 2004
Location: Henderson, NE
Posts: 413
Rupali,

i am stage 3 also. I was dx in 2003. I am in the process of getting Tykerb. My onc wrote my insurance for medical "necessity" They are paying 80% of it. My 20% is still 1,000$ amonth. I'm in contact with some advocacy places to pay for the 20% if you want the numbers i posted them aways back. My look at the whole Tykerb thing is. If one is stage 4, they could wait so when they need it is always there. For us stage 3ers, we are still looking for the "cure". If there is anything out there that will give me any chance of it, i'm going for it. I took one year of Herceptin. I pushed for more and they said no. As Dr. Slamon put it, if we can get to 6 years, we might be cured. I'm going for it!!! I think i'm going to use Tykerb for 3-4 months. I'm just going off the Finland trial where 9 weeks of Herceptin was as good as a year. Hopefully studies will show that 3 months of Tykerb will do the same.
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Michele Ulmer

dx: August 2003 stage 3b 35 pos nodes ER/PR neg Her+
4 AC 12 weekly taxol
one year Herceptin in trial
35 rad tx
vaccine trial Seattle
NED
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