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Old 04-21-2007, 08:40 PM   #1
mamacze
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Location: Madison, Connecticut
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Interesting Question!

Hi Beckie and welcome!

My fight?
vegan diet
juicing raw green veggies (16 oz per day)
Flax and salmon
blueberries every day
good spiritual direction
joined a prayer group
received the vaccine at from the tumor vaccine group in Seatte
Of course, herceptin
gratitude
lovin up my kids, hubby, family and friends
this web site

Love Kim from CT
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Old 04-22-2007, 09:26 AM   #2
Joy
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despite my bout...

with the blues, I really do try to use a lot of humor to fight. I am blessed with hilarious people in my life and I love funny movies and books. I also always try to plan things to look forward to in order to 'string myself along'. It can be little or big stuff. I have friends that I just relish spending one on one time with and we plan dinners together and I always look forward and enjoy. I love music and look forward to concerts, etc. A trip here and there is also very helpful if means allow. I tell myself that I have to be well cause i'm doing this 'thing' soon. And despite all my recent kvetching I really feel quite well and look healthy and 5 years ago they gave me maybe 3 months to live. My photo that you see is from April 2005 (in Mexico with my best friend)-3 YEARS AFTER that prognosis.

Be creative and fight on, my friend!
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with love and gratitude,
joy

dx stage I 2/2000*er/pr+; her- per IHC*lumpectomy*4 rounds A/C*30 rads*tamoxifen*dx stage 4 5/2002*huge mets to liver*tiny mets to lungs*stopped tamoxifen*5/02 taxotere/xeloda*her 2 checked with FiSH-her2+++herceptin *2/03 stopped chemo femara w/herceptin*zolodex*04 switched to aromasin w/herceptin*05 high estrogen tx*11/05taxol/carbo*7/06 stopped chemo; megace/herceptin*9/06navelbine/herceptin*5/07tykerb/xeloda great response*4/08 progression in liver; ooph/ faslodex /herceptin
6/08 began Herceptin DM-1
9/08 progression
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Old 04-22-2007, 11:37 AM   #3
R.B.
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Your might like to read and ponder the Greek Diet thread and the omega three and six material posted etc as an adjunct to treatment. (click on search and enter say omega three etc.)

Fats were around in the earliest amoeba. Omega three and six sit at the top of a huge complex and seriously influential series of pathways that inter links with much of what happens in the body in one way or other.

Your cell walls are made of fats. Your brain is more than 60% fats.....

You might like to read The China Study - T Colin Campbell - it is thought provoking. It is a well written and thought provoking book. Whether the animal protein intake he raises is also linked to fat metabolism issues I am uncertain.

This is a thought provoking link.

http://www.her2support.org/vbulletin...ught+provoking

Sugar, alcohol, mineral deficiencies, a high fat intake, and some drugs stop the body making long chain omega threes from the mother fat. Herceptin as one of its legs works in that area - does it stop long chain fats being made I don't know.

All of which are good reasons for considering fish oil (or a vegetarian equivalent if that is an issue) (A trial showed take up in women dropped off at about 2 grams of DHA a day)

There are no absolute answers as the research simply has not been done but for me there are a lot of pointers to the benefit of moderate to low fat consumption and most important balancing the omega threes and sixes, a wide diet base, lots of green and coloured things etc.. and if nothing else it should improve coronary health (which has been accepted in medical circles).

Please ensure you discuss dietary changes with your Doctor.
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Old 04-22-2007, 11:53 AM   #4
R.B.
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Depression and DHA.

Here are some links to research on depression and DHA. It does not matter if you cannot understand the detail of some of these, one can see there may be a breeze blowing and think about its direction.

http://www.ncbi.nlm.nih.gov/entrez/q...DHA+DEPRESSION

Women have a higher need of DHA and make more of it than men. If the body is functioning perfectly and it gets the raw materials it will convert about 10% of the mother omega three to long chain omega threes DHA EPA etc.

Men convert much less.

Low DHA has been linked to PND etc.

Obviously these things are synergistic and will have much more effect if based in a wide ranging non refined diet.
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Old 04-22-2007, 12:14 PM   #5
R.B.
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coQ10 is a substance that has been suggested to be of benefit to BC sufferers by some.

I have seen one reference to a very limited trial which suggested significant regression was achieved.

Again more trials are needed.

Vitacost has various coQ10 supplements at reasonable prices and has some regular dietary tips by doctors. The body is so IMMENSELY (a fact you only start realising once you start reading round medial trials) complicated and foods are hugely complex mini chemical supermarkets - diet has to be the place to start. Supplements may well help (I take some - but you do your reading and take your choice as definitive answers are in short supply), but diet has to be the starting point

http://www.vitacost.com/

Here is a link to NCBI

http://www.ncbi.nlm.nih.gov/entrez/q...arch&DB=pubmed

(if the list does not come up enter - coQ10 breast cancer - as the search term)

and one that came from typing coQ10 into the search engine above.


Again it is important to discuss supplementation if you consider it with your doctor. I cannot give you any advice and can only draw things to your attention for you to read up and consider.

RB
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Old 05-08-2007, 02:25 PM   #6
Heart Sutra
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We try to ignore the media, try to ignore the fads, try to ignore bias, and try to research from reliable sources. This last is not so easy to do as even the "best" sources really have to be checked and double checked, very often a heavily quoted study is actually being misquoted. We've learned to read for ourselves. It takes a little work.
Then we just get back to living.

Mostly, and more importantly for us, we just try to stay focused on the moment at hand. Practice, practice, practice. We are very fortunate in that we've always tried to live that way, though we'll probably never master it.

Thank you for being here

Kevin and Sue
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---Kevin and Sue---

Dx'd 10/06 IDC grade III/III
Er- pr- HER2 3+
MRM right breast 12/5/06
nodes negative
same day reconstruction started
(implants)
Stage II (2.2 cm tumor)
fairly extensive DCIS
Ct and Bone scans clean
Port placement 12/26/06
AC (4 cycles DD)to begin 1/2/07
Taxol/Taxotere (4 cycles DD)
Herceptin for one year

"There is no distinction between the one who gives, the one who receives, and the gift itself."- Hahn
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