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Old 04-18-2007, 08:06 AM   #8
Hopeful
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Join Date: Aug 2006
Posts: 3,380
Probably too late for Caroline's appointment, but this is an interesting thread. I have decided not to routine scans (other than mammogram and BSGI) because, mentally, I don't need the anxiety from possible false positives. My surgeon wanted to do tumor markers, but they are not reccomended for Stage 1 as they give both false postives and false negatives, and my onc definitely says no, and I say a resounding no, at least until it is demonstrated that I am no longer Stage 1. I think the commitment in light of no scans is to make sure to "listen" to your body, for something that seems strange, new, and out of whack, even if minor, and then seek follow up evaluation. I couldn't imagine doing tumor markers that may begin to rise for a good reason or no reason, then just waiting three months for the other shoe to drop and find out what it means, if it means anything at all. This is as much a mental game as it is a physical health issue. I think we all have to decide what best helps us to stay strong mentally, then go with it.


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