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04-02-2007, 12:27 PM
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#1
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Senior Member
Join Date: Oct 2005
Posts: 3,519
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I had capsular contraction at 7 months out from putting implants in. It was painful. The surgeon went in a few months later and removed most of the scar tissue and replaced the implant (we had decided I needed one just a tiny bit bigger... got the size wrong the first time). The scar tissue has not reformed since -and it has been 18 months since that surgery.
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Brenda
NOV 2012 - 9 yr anniversary
JULY 2012 - 7 yr anniversary stage IV (of 50...)
Nov'03~ dX stage 2B
Dec'03~ Rt side mastectomy, Her2+, ER/PR+, 10 nodes out, one node positive
Jan'04~ Taxotere/Adria/Cytoxan x 6, NED, no Rads, Tamox. 1 year, Arimadex 3 mo., NED 14 mo.
Sept'05~ micro mets lungs/chest nodes/underarm node, Switched to Aromasin, T/C/H x 7, NED 6 months - Herceptin only
Aug'06~ micro mets chest nodes, & bone spot @ C3 neck, Added Taxol to Herceptin
Feb'07~ Genetic testing, BRCA 1&2 neg
Apr'07~ MRI - two 9mm brain mets & 5 punctates, new left chest met, & small increase of bone spot C3 neck, Stopped Aromasin
May'07~ Started Tykerb/Xeloda, no WBR for now
June'07~ MRI - stable brain mets, no new mets, 9mm spots less enhanced, CA15.3 down 45.5 to 9.3 in 10 wks, Ty/Xel working magic!
Aug'07~ MRI - brain mets shrunk half, NO NEW BRAIN METS!!, TMs stable @ 9.2
Oct'07~ PET/CT & MRI show NED
Apr'08~ scans still show NED in the head, small bone spot on right iliac crest (rear pelvic bone)
Sept'08~ MRI shows activity in brain mets, completed 5 fractions/5 consecutive days of IMRT to zap the pesky buggers
Oct'08~ dropped Xeloda, switched to tri-weekly Herceptin in combo with Tykerb, extend to tri-monthly Zometa infusion
Dec'08~ Brain MRI- 4 spots reduced to punctate size, large spot shrunk by 3mm, CT of torso clear/pelvis spot stable
June'09~ new 3-4mm left cerrebellar spot zapped with IMRT targeted rads
Sept'09~ new 6mm & 1 cm spots in pituitary/optic chiasm area. Rx= 25 days of 3D conformal fractionated targeted IMRT to the tumors.
Oct'09~ 25 days of low dose 3D conformal fractionated targeted IMRT to the bone mets spot on rt. iliac crest that have been watching for 2 years. Added daily Aromasin back into treatment regimen.
Apr'10~ Brain MRI clear! But, see new small spot on adrenal gland. Change from Aromasin back to Tamoxifen.
June'10~ Tumor markers (CA15.3) dropped from 37 to 23 after one month on Tamoxifen. Continue to monitor adrenal gland spot. Remain on Tykerb/Herceptin/Tamoxifen.
Nov'10~ Radiate positive mediastinal node that was pressing on recurrent laryngeal nerve, causing paralyzed larynx and a funny voice.
Jan'11~ MRI shows possible activity or perhaps just scar tissue/necrotic increase on 3 previously treated brain spots and a pituitary spot. 5 days of IMRT on 4 spots.
Feb'11~ Enrolled in T-DM1 EAP in Denver, first treatment March 25, 2011.
Mar'11~ Finally started T-DM1 EAP in Denver at Rocky Mountain Cancer Center/Rose on Mar. 25... hallelujah.
"I would rather be anecdotally alive than statistically dead."
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04-02-2007, 04:08 PM
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#2
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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Jessica
I too have it from the silicone implant, but mine started after about 6 months, and has never gotten better....just worse...I have one 14 yr old boob to compare to the other 55 year old one.....not exactly what I thought would happen...I guess I need to go back in for surgery, but am very cautionary with active mets in my nodes right now.
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"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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04-11-2007, 09:00 PM
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#3
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Senior Member
Join Date: Sep 2005
Location: Atlanta
Posts: 87
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Thanks so much ladies for your wisdom!
I've discovered "TUMMY TIME" - lying on my belly & chest to keep the capsule stretched out. It feels very odd & uncomfortable, b/c I can't rest my head on the floor because my L breast is in the way, but it's getting better every day.And the L & R are looking & feeling more & more similar.
Thanks again for everything, ladies!
Sherri~
Sorry so long to reply to your question about reconstruction & implants! Hope I'm not too late to be helpful!
I have Mentor cohesive, silicone gel implants. On the L side, I had a skin sparing mastectomy, so the implant is placed "dual plane" -the top half of the implant is under the muscle, the bottom is over the muscle. The R side was just a simple augmentation & the implant is completely over the muscle. The L side is a 400cc implant & the R side is 250cc. Like I said, I CAN'T believe how real the right side feels.
The L, reconstructed side, is still sitting a little high & tight, but I'm still only 7 weeks post-op, so there's still progress ("dropping") to anticipate.I was trying to be really diligent about "massaging" etc, b/c I want to avoid a capsular contracture as much as possible! But I've found "TUMMY TIME" (lying on my belly w/direct pressure on my chest) has been really helpful keeping the capsule stretched out.It felt really weird at first & I can't quite rest my head/face on the floor b/c my L breast is "in the way", but I'm getting closer!
I've always been very active as a dancer & now a Pilates instructor & was athletic & small breasted. That was my greatest concern w/the recontsruction - I didn't want to feel "exposed" wearing work-out tops, etc. (I think that's so ironic that women CHOOSE elective breast augmentations so that they can expose themselves..!)
I do still feel like the new breasts are a little too big, but they don't look too big. Actually, it's only when I wear pilates/yoga tops do I feel a little "too boob-y", otherwise they really are proportionately the right size for my body & I look very balanced. But I guess I'm just still used to being small breasted.
Ultimately, I very happy with the outcome. I have a great, compassionate surgeon-he's a brilliant general surgeon/surgical onc/plastic surgeon all wraped up in one -so he's done all of the work himself & really understands what I want & why.
I hope you have as good a relationship w/your doc as I do with mine. My sister & my girlfriends are all very impressed & envious of the new "TWINS" & I gotta say, it's not awful having full, lovely breasts - even though I am short one nipple!
Please let me know if there's any additional information or insight I can offer.
Take good care &
Keep the Faith!
ps-the silicone implants feel a MILLION TIMES more natural than the saline expander!
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