Well, not so good and not so bad!!!

Sandy H · 03-31-2007, 08:22 PM

Thanks for all your wonderful support here. It really lifted my spirits. I have not worn my green shoes to oncology but I will next time. I have all kinds wild socks for every occassion and so that gets everyone's interest. The nurses and even the doctor check my socks. I tell them that is the wild side of me! Wait till they see my green shoes!! They call me the clown now can you believe that? Oh well, some times we have to create our fun when others are sleeping and having a bad day. That changes when I arrive even the visitors get a laugh out of me. Guess, I have said enough. O yes, I am surprised you can take Doxil with Herceptin??? I thought that was toxic to the heart. Gosh, I would have asked my doctor if I had of know there was any chance to putting the together. He asked me what info I had gotten off this message board and I told him Doxil is at the forefront here. He said he likes that we have always been on the same wave length here. Wishing you all well and I will keep you all updated. Thanks for the effusion info that helps me as I have to research that being new for me. hugs, Sandy

Karen Weixel · 03-31-2007, 08:45 PM

Dear Sandy,

Love, hugs and healing prayers being sent your way.

Karen

vickie h · 04-01-2007, 10:37 AM

Sandy, I have not yet tried Doxil, though I have heard it only causes hair loss in 20% of users. I was sorry to hear of your results, but I also feel that you are such a fighter and have been so for the past 5 years (far longer than they once gave us IBC patients) and I feel you have many more years ahead. I closely watch your progress as we have the same cancer. I will be starting Tykerb/Xeloda next week and wonder how you did on that. The best treatment I have experienced so far is the Navelbine/Herceptin, but I can't do that forever. I am praying that a new drug for skin mets reaches the market soon. My love and prayers are with you. Pleaase let me know how the Doxil works for you and I will keep looking for new answers to IBC. My friend is in an HKI 272 trial in Colorado (she flies out there every 2 weeks) and said her tumors have shrunk by half and her skin mets have disappeared after only 5 weeks. It is a drug similar to Tykerb. Sending you my love today, Vickie

rinaina · 04-01-2007, 02:38 PM

Let's pray the Doxil does the trick. I wish you an easy time with this chemo and hope you do well on it. Please continue to be the uplifting and positive person that I have come to know you are. You have inspired so many of us here. Hopefully, this little bump in the road will soon be taken care of. Thoughts and prayers sent your way.

Bev · 04-01-2007, 09:12 PM

Thanks for keeping us posted Sandy. The never ending saga has to be tough. Maybe I'll buy eccentrically colored shoes in your honor. For me. Best wishes, Bev.

Shell · 04-02-2007, 06:46 AM

Sandy-

Your posts always inpsire me, and I hope your new treatment goes well for you... I had doxil and did not experience hair loss.

I also had it within a few months of xeloda/tykerb, and despite my best efforts to reduce the H/F syndrome, my hands got really sore. Doxil gives the docs a bag with the ice packs, and udder cream, and sunscreen, etc. - we kept the ice packs right there at the office - to be put on the wrists and ankles during infusion...

I had herceptin along with the doxil, with no apparent problems.

Good luck w/ things, and you are in our thoughts and prayers...

Becky · 04-02-2007, 06:58 AM

Dear Sandy

I am thinking and praying for you. I know you'll continue to push back the nasties and get on with it. I just wanted you to know that I am here for you.

Love and a big hug