I finished Herceptin in Oct. My onc. does not believe in 'routine scans', she feels that there are too many false positives, etc. I see her every 3 months and have blood work-including tumor markers. I am always on the alert for anything that seems "off", although I will admit that there are days when everythng feels off and I worry about a hangnail. I think one of the most important things I do for myself is stay current with all the news, and with all the courageous women on this board who are blazing the trail!!!
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Suzan W.
age 54 at diagnosis
5/05 suspicious mammogram-left breast
5/05 biopsy-invasive lobular carcinoma with LCIS,8mm tumor,stage 1 grade 2, ER+ PR+ Her2+++
6/14/05 bilateral mastectomy, node neg. all scans neg.
Oncotype DX-high risk
8/05-10/05 4 rounds A/C
10/05 -10/06 1 yr. herceptin
arimidex-5 years
2/14/08 started daily self administered injections..FORTEO for severe osteoporosis
7/28/09 BRCA 1 negative BRCA2 POSITIVE
8/17/09 prophylactic salpingo-oophorectomy
10/15/10 last FORTEOinjection
RECLAST infusion(ostoeporosis)
6/14/10 5 year cancerversary!
8/2010-18%increase in bone density!
no further treatments
Oncologist says, "Go do the Happy Dance"
I say,"What a long strange trip its been"
'One day at a time'
6-14-2015. 10 YEAR CANCERVERSARY!
7-16 to 9-16. Extensive (and expensive) dental work done to save teeth. Damage from osteoporosis and chemo and long term bisphosphonate use
6-14-16. 11 YEAR CANCERVERSARY!!
7-20-16 Prolia injection for severe osteoporosis
2 days later, massive hive outbreak. This led to an eventual dx of Chronic Ideopathic Urticaria, an auto-immune disease from HELL.
6-14-17 12 YEAR CANCERVERSARY!!
still suffering from CIU. 4 hospitilizations in the past year
as of today, 10-31-17 in remission from CIU and still, CANCER FREE!!!
6-14-18 13 YEAR CANCERVERSARY!! NED!!
that just isn't the way it goes. As you said - what will be will be. My onc. also went on to explain that doing tests and not doing tests statistically shows no increase in survivorship. So.................I guess we all have to do what we're comfortable with. I for one, agree with my onc. HOWEVER wishes there were better ways to check for recurrence with flawless results BUT so far that just doesn't seem to be the case.
Years NED
Hybrid Mode
