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Old 03-21-2007, 11:18 AM   #1
Malena
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Look at my hair here in the pic! No curly , but really without a form! They are like wool! I had long long hair before! But I like also my new look, I look more "lady"!
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Old 03-22-2007, 01:19 PM   #2
Chelee
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I see many ended up with curly hair after chemo. I was totally shocked when my hair came back curly. I have *always* had very thin fine hair. Super straight and blonde. Now its hilarious to me. Its on the thicker side and very curly & wavy. This is the first time in my life its like a wash and wear type of hair. It seems to do its own thing. lol I'm just not use to it. In fact I still use my wig most the time. I am so use to long, straight blonde hair. But the wig is so HOT to wear its time to see let a hair dresser cut & style it for me...clean it up a bit. It is kind of fun to have something totally different after all these years. I never thought I would see the day I had any wave or curl in my hair...just unreal. Its just now long enough to cover my ears.

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DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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Old 03-22-2007, 03:27 PM   #3
rinaina
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just went for my second haircut and color yesterday and had a better outcome color wise this time. still not as blonde as it use to be but it is getting there. was able to get a few highlights in the areas that were a bit longer...yeah! my curls are so tight. i can't do anything as far as styling other then a little styling gel and then just let it be. never looks the same twice. my stylist blew it dry straight but it was more work than what it is worth. actually like the way it looks curly better, but I still look forward to when my hair returns to how it use to be....at least I hope it will return to that. I too still use the wig for special occasions but I agree, they are too hot and now I have to wear a cap to contain my hair before I put the wig on so it isn't as comfortable and that adds to the heat retention as well. I still maintain that the hair thing was one of the most difficult parts of all of this for me next to how sick I was from chemo. To better hair days ahead for all!!!!!!!!!!!!
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~Rina~
Dx:3/06 had a lumpectomy April 19, 2006
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
AC 4 dense doses
34 radiation treatments including booster doses
receiving herceptin every 3 weeks since late August 2006 for 12 months
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Old 03-22-2007, 08:42 PM   #4
Bev
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Went from Halle Barry to Don King this past year. Started out with long, fine straight hair before BC. The curls are very cute, just don't know what to do with them. I get compliments on the curls. I never received compliments on my straight hair.

My curls don't look like they are going to give up any time soon, unless they colapse from their own weight. My hair isn't getting longer it's just getting bigger.

I'm debating between keeping it cut short or letting it grow long and wild. BB
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Old 03-23-2007, 08:29 AM   #5
rinaina
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I can so relate with everything you wrote. I refer to myself in the morning as Don King! My curls too are so tight and can't tell if my hair is growing, it just gets fuller with curls.
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~Rina~
Dx:3/06 had a lumpectomy April 19, 2006
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
AC 4 dense doses
34 radiation treatments including booster doses
receiving herceptin every 3 weeks since late August 2006 for 12 months
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Old 03-23-2007, 08:59 AM   #6
janet/FL
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The darn thing about these curls is just when they start growing out and you start to like them and see how easy it is to take care of--they--and all the body and some of the thick hair--just dissapear! At least that is happening to me right now! Give me back the body and the curls! It was just--wash and brush out--I loved it! But this only seems to last a few months. Did anyone have it last longer?
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Old 03-23-2007, 09:15 AM   #7
betlen5
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Janet, mine lasted about the same amount of time....DARN IT!! I loved curley hair. However, I started letting my hair grow longer instead of keeping it short in fear that I might loose it again. (It's only hair) It is know getting the body, waves and some curls back in it...Weird huh....

There may still be hope for those of us who liked the body the curles gave us..

Take care Janet..AND EVERYONE ELSE HERE((((((HUGS))))))
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1/2002 DX stage IIa IDC er/pr+ her2 3+ positive: insitu ductal carcinoma right breast, 3cm 8 node removal all neg;lumpectomy;4 rounds A/C; 33 rads
tamoxifen
4/2004 DX Local Reacurrance; er/pr+ her2 3+ positive; nodes 9 of 12 positive largest 1.5 cm; 28 rads;stopped tamoxifen;went on Femara/lupron
8/2004 DX Local Reacurrance; er/pr+ her2 3+ positive; dbl mas reconstructive surgery w/tran flap; no chemo or drugs
11/2005 DX Local Reacurrance; er/pr+ her2 3+ positive; Taxol/Herceptin 1x weekly for 12 weeks; Herceptin for 9 months 1x 21 days
12/2006 DX Local Reacurrance; er/pr- her2 3+ positive; Her 2 rechecked with FISH her2+++ er/pr-
3/9/07 Started Tykerb (Lapatinib) 1250 mg/once daily
Xeloda (Capecitabine 2000 mg/m2/daily 1-14 every 21 days
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