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Old 03-20-2007, 08:57 AM   #1
Margerie
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Congrats on your somewhat unremarkable boob! I hope your axilla calms down so you can enjoy life. It probably is sore from all that inflammation in your breast.

I know you have had such stress. Try to rest and recover (at least for a day!)

Have you found your new onc yet? Hope you can make a fresh start with him/her.
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Are we there yet?


Dx 10/05 IDC, multi-focal, triple +, 5 nodes+
MRM, 4 DD A/C, 12 weekly taxol + herceptin
rads concurrent with taxol/herceptin
finished herceptin 01/08
ooph, Arimidex, bilateral DIEP reconstruction
NED
Univ. of WA, Seattle vaccine trial '07
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Old 03-20-2007, 09:35 AM   #2
Joy
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Chelee, I'm choosing to think you are all good! And I also hope this is a fresh new start with a fresh new team of docs!
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dx stage I 2/2000*er/pr+; her- per IHC*lumpectomy*4 rounds A/C*30 rads*tamoxifen*dx stage 4 5/2002*huge mets to liver*tiny mets to lungs*stopped tamoxifen*5/02 taxotere/xeloda*her 2 checked with FiSH-her2+++herceptin *2/03 stopped chemo femara w/herceptin*zolodex*04 switched to aromasin w/herceptin*05 high estrogen tx*11/05taxol/carbo*7/06 stopped chemo; megace/herceptin*9/06navelbine/herceptin*5/07tykerb/xeloda great response*4/08 progression in liver; ooph/ faslodex /herceptin
6/08 began Herceptin DM-1
9/08 progression
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Old 03-20-2007, 11:29 AM   #3
Sandy H
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Your report sounds good to me. Why don't you wait until you are healed from your surgery and see how you feel. You may have to do some stretching exercises in physical therapy to loosen up that area. There are lots of nerves around the arm area, having a port I am sure may change how some of those nerves act. Having skin mets and lymphedema in the chest area from time to time gives me many different sensations and some time pain in the fat pad as they call it between the arm and chest. I believe it is called cord syndrome or a tightening of the fat pad. I have been through lymphedema treatment a few times and have had that cord worked on by a lymphedema specialist. One does not have to have lymphedema to have arm pain. If this does not resolve after you are healed from surgery I would at least get a consult for some physical therapy. I just had a friend after 8 years of a bc diagnose, with no recurrence, complain about arm pain and chest discomfort. She had a lumpectomy 8 years ago with radiation. She had been to physical therapy and still had pain. I suggested she see my lymphedema specialist which she did and now she is doing fine or I should say is much happier, she has daily stretching she does and feels so much better. I am not a doctor or even a nurse but this maybe something you will want to think about. Wishing you well. hugs, Sandy
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Dx. 03/01, Rt. IBC
AC/Taxatere
Rt. MRM-with graft Lt. simple
5 rads-skin mets
Herceptin, taxol, carboplatin (taxol seem to be the magic drug)
Navelbine & xeloda (did not work)
topical miltex for skin mets
Tykerb/xeloda
thoracentesis x 2 left lung fluid shows cancer cells
Port removal (4 years) with power port replacement
Doxil
Updated 05-07 Scans show no bone or organ involvement we shall see!




I shall not pass this way again. Any good I can do or any kindness that I can show let me not defer or neglect it for I shall not pass this way again.
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Old 03-20-2007, 04:33 PM   #4
Hopeful
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Chelee,

I am glad that your surgery went well and that you can now focus on recovering and feeling better. All good wishes coming your way.

Hopeful
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Old 03-20-2007, 09:12 PM   #5
Chelee
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Becky, Thanks for all the great information. Your always so great at explaining things. It sounds like I got most of the information correct other then the fact that NOT all hyperplasia turns into DCIS. Maybe my surgeon said it *can* turn into DCIS and then IDC over time. (Verses that it *does* over time.) I just know I feel a sense of relief that this is over & done with.

My surgeon assured me there was no signs of DCIS...only the hyperplasia...so that was very good news. The only thing left to cause this pain in the axilla *has* to be the port? I've had the port in for 13 months now and I know it sure looks bad on my arm where the cathether tubing runs under the skin. Its all red and has scar tissure built up on it. I do believe I am at the END of my herceptin. But to be honest I've kept my mouth shut since my onc pays NO attention to me or whats going on. If they gave me a few extra herceptin by accident, I sure wasn't going to say a word about it. I missed three wks of herceptin when I landed in the hospital...so this month probably is the LAST of herceptin. I know my nurse just asked me this last time? (I think they are ON to me.) LOL I'm busted. So if they figure it out for sure...I WILL have my port pulled to see if the port is the problem? Process of elimination. My axilla feels like I *scraped* the *inside* of it really hard on a brick wall. It really hurts. I'll give it a couple weeks to settle down and then see about getting it pulled.

One last thing...I am SMILING after getting this last path report...and even more so after hearing from you...and Lani's great information she took the time to post. Its much apperciated.

Chelee
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DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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Old 03-20-2007, 11:49 PM   #6
Chelee
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Lani, Your post was very enlightening. Yes I am perimenopausal. Four days after my surgery I was spotting. My body was trying to start my cycle for the *first* time in a year. So that no doubt would explain the high degree of florid my surgeon mentioned. (He said it was really HIGH.) But thanks to you...I now know why. Thanks so much for your time and trouble to post those for me. I am just thrilled now for a change. I've had enough stress this year...its about time I get some good news.
------------------------------------------------------------------------------------

Thanks to each and everyone one of you for your replies. I get so much more here then I could even think about getting down at my cancer center. You guys are all awesome.

Chelee
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DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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