Questions on bone pain and hot flashes

LAURIE · 03-10-2007, 08:29 AM

After just finsihing my last taxol, I agree with everyone else about the leg pain. I also had other pain, my collar bones, wrists and feet. The numbness in my toes and fingers startred about week 5 or 6. I had my last treatment on Tuesday and I feel like I am coming around again. I do always feel worse at night. As far as the hot flashes, I hear you!! They are driving me crazy. Couple of more side effects that bothered me on Taxol was bloody boogers and acne. The acne is the one that really has got me down in the dumps. I hope it is from the steriods or Taxol and not Herceptin.

If I got through this you can too. I am a complainer and do not tolerate pain well. On Friday I told my parents I was giving my husband a break and they could spend the day hearing me moan. I look forward to the day when you are done. I am sending white light and the permission to complain anytime you want.

bobbiw · 03-10-2007, 09:07 AM

Oh and then do I dare chime in to say that after the Taxol, if you begin to take Tamoxifen, the hot flashes only seem to get worse! I too have bone/joint pain. Mine began after my ACT was finished and on Herceptin/Tamox.

I was hoping to participate in a Mayo trial to deal with the hot flashes by taking Celexa but it seems I am not fully menapausal so will not be able to participate.

Bobbi

Bev · 03-10-2007, 09:07 PM

Still have hot flashes after 1.5 years. I'm Ok with it. I dress in many layers and routinely take everything off and put it back on again, and repeat procedure 10x per day or as needed.Cuts into sleep time a little, but I'd rather be hot than cold.

Before taxol, my onc nurse said to take daily B-6?. I didn't have any pain during TX. After tx, my toes hurt, but who knows?

Neulasta can cause similiar pain. Good luck. Bev

Stephanie B. · 03-12-2007, 11:01 AM

I forgot to put in my previous post that I took a B Complex and Glucosimene? during Taxol. It really seemed to help with the pain.

Stephanie

doh2pa · 03-12-2007, 01:00 PM

Yes, try the B-6 (50 mg twice a day) and Glucosasmine. Glucosamine is a powder and I took a tsp in juice or water 3 times per day. I think it really helped with the numbness and tingling, tylenol helped with the pain.

As far as the flashes, I'm a 3 year survivor and still getting them. I do have to say that they have gotten less frequent and less potent this last year so I'm sure they will for you also.

Hang in there, we know it's tough but you have all of us here for support.

Donna

suzan w · 03-12-2007, 01:41 PM

my 2 cents worth...!!! joint pain started with herceptin and arimidex...better now... As for the hot flashes...whoa yeah...sometimes they are so bad it is like a mini-anxiety attack!!!