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03-08-2007, 05:49 PM
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#1
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Senior Member
Join Date: Sep 2005
Posts: 77
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3 year survival
Tomorrow, March 9th will be 3 years since my diagnosis.
I recently had a dig. mammo, blood work and markers.. all were fine.
3/24/04 I had a partial masectomy...
4/14/04 an axillary node dissection ( 14 removed)
Primary tumor was 2.2cm IDC.. 3/4 nodes positive ( requiring surgery number 2 )
vasc. invason
3 DCIS areas close to primary
1 of 14 nodes positive at dissection
DD A/C, Taxol, 37 rads, 1 year Herceptin Finished 5/06.
Er/Pr neg
Her2 pos.
grade 2
I feel very postive and am grateful that the results of the herceptin trials were reported approx. 6-9 months after standard chemo ended. Actually , at the time
there was some discussion time about benefit of herceptin for me being almost 9 months out of treatment. My onc. called her colleage at Dana Farber at the time to get his take on benefit, but he was pretty non-commital- stating only that at the time ( May '05 ) they were using 6 months as a standard cut-off.
My onc. and I both agreed-- let's do it and I' m so glad that I did.
Now almost 2 years later ( post clincal trial reports), there is so much more emperical data that the treatment is almost standard now. Fortunately my echo cardiagrams remained normal throughout.
And so, here I am 3 yeras after diagnosis with an attitude that I'll be around for a good long time and tomorrow around 5 PM, I will raise my glass of wine to celebrate life with all it's trials and all it's gifts.
Please join me if you wish.
Love and my best to all of you.
Carol
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03-08-2007, 06:12 PM
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#2
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Senior Member
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
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Congratulations Carol! What a milestone you have reached. Wishing and praying for many more years of celebration
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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03-08-2007, 06:38 PM
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#3
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Senior Member
Join Date: Jun 2006
Location: San Antonio, TX
Posts: 2,357
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Hat's off to you Carol! What a victory - 3 years!
Here's to 3 x 3 more and counting! 
__________________
MA in TX.
Grateful for each and every day....
Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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03-08-2007, 07:16 PM
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#4
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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CAROL
What a great milestone.....I will be thinking of you tomorrow that your new journey of many many more happy years are ahead for you....I know the feeling, I just celebrated my 5th year, 3 1/2 yrs as stage IV....NEVER GIVE UP!!!!!
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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03-08-2007, 09:29 PM
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#5
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Senior Member
Join Date: Jan 2007
Location: Thornhill, Ontario
Canada
Posts: 2,320
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Carol,
Congrats on reaching the 3 year milestone!! This is so positive to hear for those of use in treatment now (I had my 3rd and final FEC today, starting Taxotere in 3 weeks, then Herceptin for a year) - hopefully this is the wonderdrug for us Her2 neu+ ladies...
Here's to many many more 3 year milestones
Caya
__________________
ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08
Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
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03-08-2007, 09:31 PM
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#6
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Senior Member
Join Date: May 2006
Location: northshore suburb of chicago
Posts: 1,093
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Carol, I raise my glass to you too and congratulate you on reaching the 3 year mark. Here's to many many more healthy and happy years.
__________________
~Rina~
Dx:3/06 had a lumpectomy April 19, 2006
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
AC 4 dense doses
34 radiation treatments including booster doses
receiving herceptin every 3 weeks since late August 2006 for 12 months
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