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03-07-2007, 06:42 PM
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#1
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Senior Member
Join Date: Jan 2007
Location: Thornhill, Ontario
Canada
Posts: 2,320
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Hi Grace,
I agree with everyone - try to get an MRI - I had a mammogram and breast ultrasound at the end of June, 2006 - showing nothing!!!- went in for a breast reduction on Oct. 16, 2006 (not even 4 months later!!) - my plastic surgeon found and cut out my 1.7 cm. tumour - had a breast MRI in November before my mastectomy - that breast MRI found another tumour in my right breast (which was coming off anyways) - final pathology did find a second 1.0 cm. tumor -
I am premenopausal with very dense breasts - a recent study showed that gals like me are 5x more likely to get BC - so I will insist on getting the MRIs from now on -
I've always been the nice, good girl - not anymore - You just do what you have to and get whatever you need - we are fighting a beast, so I guess we'll have to behave like one (within reason).
keep us posted
Caya
__________________
ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08
Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
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03-07-2007, 07:06 PM
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#2
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Senior Member
Join Date: Apr 2006
Posts: 543
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Grace,
You may ask your onc if a double PET/CT scan at about one hour interval may be indicated in your case to eliminate any doubt about a false positive.
As you probably know, the second scan should show no increase in uptake (SUV number) to signify that a suspicious spot is not malignant.
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03-07-2007, 07:35 PM
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#3
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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Mri...
Grace,
First of all you deserve to have peace of mine. After experiencing a bc dx.
we cannot take anything for granted. How could any report expect you to
wait 6 months? It is so silly of them to even think so. I always wonder if it
were their wife, mother, sister etc. if the tech would feel the same way.
I would just have the MRI to have peace of mind and have if need be time
to take proper action. I am sure Becky is correct and it is just changes from
your surgery, but it never hurts to check it.
All good wishes,
Jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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03-08-2007, 11:00 AM
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#4
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Senior Member
Join Date: Aug 2006
Posts: 3,380
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KellyA,
I can't believe your doctor behaved the way he did, especially since a history of benign breast biopsies is ITSELF a risk factor for bc. I am also struck by your description of how the larger tumor "hid" behind the scar tissue. I thought of my own tumor as "hiding" also - it positioned itself slightly beneath the upper left areola of my nipple - a position where it was very difficult for the doctors to palpate it and extremely difficult to visualize with us. The computer check of the mammo against the prior years' detected a small area of difference described as an "architectural distortion" which allowed the radiologist to pick it up with magnified views. At times, it makes me think the disease is actually sentient and knows exactly what to do to survive. (I know, I scare myself, sometimes!)
Grace,
Do whatever you need to do to give yourself comfort and sleep well at night. No one needs something eating away at their peace of mind. I have read enough of your posts to know you can firmly - yet gracefully  - get your medical team to give you the requested attention and treatment. Best of luck to you, and please let us know your results.
PS - I have posted in the articles of interest forum a story on yet another new technology for mammography, called CT Laser mammography. It is not invasive, does not involve compression, and is reputedly able to detect angiogenic activity, which would indicate tumor growth. Hope it is available here soon!
Hopeful
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03-08-2007, 11:10 AM
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#5
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Senior Member
Join Date: Nov 2004
Location: Colorado
Posts: 131
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Needle Biopsy
Cannot agree more with the "more tests" theme your hearing here - but I would lean more toward the ulrasound guided needle biopsy. MRI/CT etc are great - but for peace of mind with an already identified area of mass - the short needle biopsy can provide REAL metrics!
My 2 cents
Love and Light
Mel
PS - Congrats on staying so dilligent! Way to be part of your team!
__________________
Mel Gordon, Husband of Lisa Lowe - Queen of Love and Light and the bravest person I know!
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03-20-2007, 11:22 AM
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#6
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Guest
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Resolution
Hi--thanks to all of you who responded. I called my breast surgeon's nurse and also send an email to the surgeon asking if I could have some further tests, or at least some reassurance that the BI-Rad3 finding was really benign. My surgeon initially responded that she preferred not to do an MRI this soon after surgery as I would probably get a false positive. She also said she would talk to the radiologist further but that it's usual to give all lumpectomy mammograms a BI-Rad 3 reading--she said it's a way to alert radiologist in the future to look closely, as this is someone who had breast cancer.
Today I saw her and her nurse, while there for my herceptin infusion, and she told me that two radiologists had reviewed my films and that what they had seen was, in fact, changes from surgery. She agreed that my next mammogram would be digital (my breast is still dense and difficult to see through). She did tell me, though, that digital mammograms are not as good at spotting calcifications, so that's a concern since I had DCIS as well as IDC. Oh well, I guess no test is perfect for everything.
Thanks again for your support.
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