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Old 02-28-2007, 12:09 PM   #1
Cathy1
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Join Date: Nov 2005
Posts: 43
Thanks for Helping!

Thanks to All of You!!! I have come to the conclusion that each of you is a hero and someday I hope we all meet in Heaven and tell how we each won our battles!

The shock is beginning to wear off. I had herceptin yesterday and will get it every three weeks, along with zometa and then femara once a day.My brother called the onc to see if I can get a biopsy but they wouldn't put him through because he wasn't listed as one of my peeps, haha- one of those authorized to speak about my case.
I want to go back on xeloda with the herceptin because I found it to be a pretty easy regimen although they did cut back my dose because of hand,foot syndrome. It still did a great job together.
Last summer, my scans were all clean and I asked my retiring onc if I could go off the drugs. He said. "Well, what is your plan?" I said, "Well I can come in for scans whenever you say, and if there's a recurrence, then I will go back on." He said, "Fair enough." My scans were good before Christmas and now this! I had cellutlitis in my lymphedema arm at Thanksgiving and they put me in the hospital on antibiotics for three days. That's when all this started I think. Yesterday my white count was a little off and the nurse asked me if I had an infection, fever or recent illness. I said, only this horrible pain under my arm.
Because I have stubborn rashes under my other arm, under breast and on c-section scar, I wondered if it is possible to have the same type of thing on my
other side under the skin? The dermatologist called them "inverted psoriasis". The thing that works on them is steroid cream and when people get severe psoriasis , steroids is the treatment that works.
Sometimes it really burns along the inside of my arm. Do any of you get burning? I am wondering if it is cancer eating away at my skin?
Thanks again for your help and I will keep you posted. God is awsome and so good to help me through everything and it is a great consolation knowing I am in the palm of His Hand. God Bless You All! Cathy
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Old 02-28-2007, 06:36 PM   #2
Vanessa
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Location: Houston, Texas
Posts: 624
Best of luck on your new regiman. I will keep you in my thoughts and prayers.
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Old 02-28-2007, 09:52 PM   #3
Bev
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Join Date: Dec 2005
Location: Alexandria, VA
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Really sorry about the setback Cathy.It probably feels like you're back to worse than square 1. By all means get back on Herceptin and others to see what happens. I remember ancient posts where Gina talked about tumor load. Eg. If you have too many or too big tumors, they use up all the Herceptin before it can work on the little circulating cells. This would offer a reason to get some of this cut out. Do search this as my memory is foggy.

It may be worthwhile to research clinical trials. I'm hoping you can get it back under control. It's happened before where Herceptin+ wiped out mets. I hope that's what happens for you. BB
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Old 03-01-2007, 03:31 PM   #4
vickie h
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Location: san luis obispo, ca
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Hang in there, Cathy

Cathy, I am so sorry to hear about your scans, but please get a second opinion and start some treatment ASAP. You deserve to talk to another Onc and figure out all your options at this time. I am praying for you and know that things will change for you soon. Let me know how you do and what you decide. Much love always, Vickie
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