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02-28-2007, 10:05 AM
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#1
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Senior Member
Join Date: May 2006
Posts: 144
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I didn't have any scans during treatment or after, until the recurrence was found. My onc. said for early stage the only followup would be bloodwork, physical exam ev. 3 months, and how I was feeling. She said scans can have false positives.
Because of the lump I found my onc. ordered a whole body PET/CT.
- Anna
p.s. 49 & pre-menopausal at initial diagnosis.
__________________
- Anna
Stage I - DX 9/2005 ER/PR-, HER2+, grade 3, DCIS, IDC multi-focal (1.05cm)
DD 4 A/C finished Jan 31, 2006
Herceptin weekly finished Jan 31, 2007
recurrence to chest wall on last month of Herceptin
Stage 3B - 3/15/07 - 2 carcinomas in dermal lymphatic
Rads finished 6/5/07
12x TH finished 9/10/07
12/07 - Clear scan!
3/08 - 4 month Melatonin trial
1/09 - osteoperosis - start Alendronate
2/09 - 4-month Simivastin trial
3/13 - take drug holiday after 5 years of Alendronate
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02-28-2007, 10:50 AM
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#2
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Senior Member
Join Date: Oct 2005
Posts: 476
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My dx and treatment (or the lack of) follow. I just saw my onc yesterday and we discussed the possibility of metastasis. He said that for HER2 positive patients, the recurrence, if it ever happens, will be from 18 to 24 month on the average. For HER2 negatives, the danger zone is about 4 to 5 years. The micro invasions will take that much time to build up to the point of detection or symptoms. Whether I got chemo or not, the consequence is only a few percentage. For the risk of improving that little margin of advantage, the trade off is the danger of chemo and radiation. Of course, my option of doing mastec shifts the odds in my favor for a few points. Overall, he had no objection to my own decision. I work in a large hospital and have seen many cases.
__________________
Ann
Stage 1 dx Sept 05
ER/PR positive HER2 +++ Grade 3
Invasive carcinoma 1 cm, no node involvement
Mastec Sept 05
Annual scans all negative, Oct 06
Postmenopause. Arimidex only since Sept 06, bone or muscle ache after 3 month
Off Arimidex, change to Femara 1/12-07, ache stopped
Sept 07 all tests negative, pass 2 year mark
Feb 08 continue doing well.
Sep 09 four year NED still on Femara.
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02-28-2007, 11:22 AM
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#3
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Senior Member
Join Date: Jun 2006
Posts: 153
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I was 35 and premenopausal at diagnosis. I had 4.2 cm of DCIS grade 2/3, and 7mm er/pr- her2+, SBR grade 2 (6/7), mitotic count of 1, sentinnel node negative, no lypho/vascular invasion, no neural invasion.
5/05 clean PET/CT scan clean other than left breast
6/05 bilateral mastectomy, one side of recon failed with infection
8/05-11/05 4 AC
11/05-12/06 Herceptin for 1 year
10/05 head CT scan and chest xray both normal
3/06 bone scan normal
10/06 transvaginal ultrasound normal
11/06 abdominal CT normal
12/06 chest xray normal
1/06 bilateal DIEP reconstruction
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02-28-2007, 12:21 PM
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#4
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Senior Member
Join Date: Sep 2005
Location: Alaska
Posts: 2,018
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1.6 IDC,DCIS HER2+++,ER+,PR+, no Herceptin
By small, do you mean stage 1/under 2 cm, Janet? If you do...
1.6 cm IDC with DCIS
HER2+++, no FISH, ER+ PR+
Age at dx, 51
NED following CAF x 6, IMRT, hormonal treatment
5 years out
1 brain MRI last year for vertigo/falling plus mildly elevated LFTs (normal)
annual mammos
1 bone scan at dx, 1 bone scan last year
1 DEXA scan
2 chest/abdomen CTs (normal) for unresolved right-sided pain
1 chest MRI (normal)
AlaskaAngel
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02-28-2007, 01:28 PM
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#5
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Senior Member
Join Date: Feb 2007
Posts: 108
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You can see below my Dx and treatment plan.....
Best of luck!
__________________
Age 50, premenopausal
Dx 1/2/07 DCIS/IDC
Lumpectomy 1/4/07 1.1cm tumor
SNB 3 nodes clear
Stage 1, Grade 2, HER2+++ (FISH 6.8)
ER + / PR +
TCH, 6 rounds, finished 6/1/07!!!
Herceptin to continue for 1 year
36 rads finished 8/22/07
Port out 8/27/07
Switched to Herceptin weekly for joint pain
Ooph 11/13/07
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02-28-2007, 01:34 PM
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#6
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Senior Member
Join Date: Sep 2005
Location: Grand Rapids, MI
Posts: 1,516
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Here's mine...
Take care and God bless.
Rhonda
__________________
Rhonda
Dx 2/1/05, Stage 1, 0 nodes, Grade 3, ER/PR-, HER2+ (3.16 Fish)
2/7/05, Partial Mastectomy
5/18/05 Finished 6 rounds of dose dense TEC (Taxotere, Epirubicin and Cytoxan)
8/1/05 Finished 33 rads
8/18/05 Started Herceptin, every 3 weeks for a year (last one 8/10/06)
2/1/13...8 year Cancerversary and I am "perfect" (at least where cancer is concerned;)
" And in the end, it's not the years in your life that count. It's the life in your years."- Abraham Lincoln
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02-28-2007, 02:31 PM
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#7
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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Heres mine
Stage 1 .7cm tumor or 7mm
Stage IV 16 months later
The rest is below
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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02-28-2007, 03:38 PM
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#8
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Senior Member
Join Date: Sep 2005
Posts: 312
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Glad so many are posting. I hope you that haven't posted will do so.. Angel, any in the stage one range would be appropreate. It might be worthwhile to have a permanent posting of this so the newbies could find immediate answers to their question. There is so little time for them to make decisions. Could also be one for the other stages women are diagnosed with and their treatment since that is a common question asked.
Thanks all
__________________
Janet
Endometrial Cancer 2002
Mammogram 11/2004
Lumpectomy 12/2004
Stage 1, 9mm DCIS, grade 2, Her2+++, ER/PR negative
Refused A/C as recommened by two oncs.
35 treatments of radiation that ended March 4, 2005
Changed oncologists and began
Taxotere/Herceptin August 2005. Finished Herceptin July 2006
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