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Old 02-26-2007, 02:55 PM   #1
Joy
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Join Date: Jul 2005
Location: Ft. Collins, Colorado
Posts: 546
cathy

I can hear the panic and fear you are feeling (takes one to know one kind of thing). So feel it, cry about and then regroup and remember how STRONG you really are and how strong you will continue to be. A second opinion is ALWAYS a great thing because you either affirm the plan you are on or facing or you find a new one that works great so it is win-win. So don't hesitate on that. We are hear for you and it is good that you posted so we can all be thinking of you in powerful ways.
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joy

dx stage I 2/2000*er/pr+; her- per IHC*lumpectomy*4 rounds A/C*30 rads*tamoxifen*dx stage 4 5/2002*huge mets to liver*tiny mets to lungs*stopped tamoxifen*5/02 taxotere/xeloda*her 2 checked with FiSH-her2+++herceptin *2/03 stopped chemo femara w/herceptin*zolodex*04 switched to aromasin w/herceptin*05 high estrogen tx*11/05taxol/carbo*7/06 stopped chemo; megace/herceptin*9/06navelbine/herceptin*5/07tykerb/xeloda great response*4/08 progression in liver; ooph/ faslodex /herceptin
6/08 began Herceptin DM-1
9/08 progression
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Old 02-26-2007, 03:42 PM   #2
Barbara H.
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Join Date: Sep 2005
Location: Newton, MA
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Hi Cathy,
I can certainly understand how upset you are. Three years ago I had it through out in lymph nodes, brain, lungs, liver. After brain surgery Herceptin as a single agent took care of it, and I was NED until last March. Now I am dealing with it in the bones. I would also get a second opinion. I also do not understand why you were taken off Herceptin. Nevertheless, you might want to see what Herceptin, Femera, and Zometa will do on their own. Right now is hard and you will have your ups and downs.
Nevertheless, I still continue to teach third grade full time. You can still have a life and "quality" is important.
Best wishes,
Barbara Holz
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Old 02-26-2007, 03:43 PM   #3
tousled1
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Location: Acworth, GA
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Cathy,

I'm so sorry to hear your news. They can do a needle biopsy under your arm. I had one done when I was diagnosed because of pain in my underarm. Why would the onc want to wait to put you on chemo? I think a second opinion wouldn't hurt. Hang in there, you can beat this!
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Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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