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Old 02-23-2007, 08:26 AM   #1
janet/FL
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Join Date: Sep 2005
Posts: 312
Sheryl, I waited eight months to start chemo and Herceptin as I could not get Herceptin before that. It was not approved for cancer, stage one, like yours and mine is. It is now. I had Herceptin combined with Taxotere (similar to Taxol).

I would also ask your doctor if you could receive TCH chemo. Excuse the spelling, but that would be taxol, carplatin, and Herceptin together. I believe that is the combo many doctors are giving to patients with your type of diagnosis, assuming you are Stage One. They skip the Andriamycin due to the possible heart damage when used with Herceptin. Perhaps someone can steer you to some information you can give your doctor.
Congratuations on being an activist for your treatment. I know it isn't easy and very worrisome.
Hugs
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Janet
Endometrial Cancer 2002
Mammogram 11/2004
Lumpectomy 12/2004
Stage 1, 9mm DCIS, grade 2, Her2+++, ER/PR negative
Refused A/C as recommened by two oncs.
35 treatments of radiation that ended March 4, 2005
Changed oncologists and began
Taxotere/Herceptin August 2005. Finished Herceptin July 2006
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Old 02-23-2007, 08:39 AM   #2
kk1
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Join Date: Sep 2005
Posts: 182
Sheryl;

I agree with Janet that you should really question your Onc about using adrimyacin when Herceptin is to follow. The incidence of heart problems due to herceptin is much higher in women who had adrimycin. I would also question the herceptin and tamoxifen combo, please asking him to show you or cite scientific papers that show that this combo has a potential to work. From my literature searches they are few and far between and the current literature has much stronger evidence for herceptin and an AI (arimidex), if your premenopausal you can use lupron or zoladex to turn off the ovaries.


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Old 02-23-2007, 01:22 PM   #3
Barbara2
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Join Date: Sep 2005
Location: South Dakota.
Posts: 621
You asked,"Has anyone else waited this long to start Herceptin?" I started herceptin 26 months after chemo.
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Blessings and Peace,
Barbara

DX Oct 02 @ age 52 Stage 2B Grade 3 Mastectomy
"at least" 4.5 cm IDC 1+node ER+61% /PR-
Assiciated Intraductual component with Comedo Necrosis
Her2+ FISH8.6 IHC 2+
5 1/2 CEF Arimidex
Celebrex 400mg daily for 13 months
Prophylactic mastectomy
Estradiol #: 13
PTEN positive, "late" Herceptin (26 months after chemo)
Oct 05: Actonel for osteopenia from Arimidex.
May 08: Replaced Actonel with Zometa . Taking every 6
months.

Accepting the gift of life, I give thanks for it and live it in fullness.
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