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02-18-2007, 09:28 AM
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#1
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Senior Member
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
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Chelee,
When I have blood drawn at the oncologist's office they always use my port. I get Herceptin every three weeks and therefore they draw blood every three weeks. My red blood count still continues to drop so I still get Procrit shots. When I go to my primary care provider and they draw blood they use my left arm and I have had no problems. Also when I had my bilateral mastectomy they used my port for the anesthesia since they couldn't use either arm. It was use the port or use one of my legs. I also have blood pressure taken on the left arm. If I'm correct the surgeon will at least check one node for cancer. As to which surgery you should have first, I can't answer. If it were me I'd ask if I couldn't have both at the same time. I don't like going under general anesthesia so that's why I'd ask for both
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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02-18-2007, 09:34 AM
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#2
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Senior Member
Join Date: Feb 2005
Location: Wisconsin
Posts: 159
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Chelee--
What reason are they giving you for not checking the nodes? I'm not sure why they wouldn't--it would be interesting to know what their reasonsing is. Sure seems easier (and less costly) to check out a node or two. I suppose that because there is no cancer site, they can't look for a sentinel node, so they won't know which nodes to check out?
Val
__________________
BLOG:
http://valleygirlvnp.blogspot.com/
Dx 11/04, Age 42, ER-/PR-, HER2+++
3 months weekly Herceptin, Taxol. Carboplatin
Significant tumor shrinkage
Mastectomy 3/05; Stage 3b, 9 cm tumor, 5/8+ nodes
3 more months weekly Herceptin, Taxol. Carboplatin
7/05 30 radiation treatments, IMRT planning approach
Started 1 year of Herceptin 9/05
9/06 Began quarterly triple doses Herceptin. Brain & breast MRIs semi annually.
* * * * * * * * * * * * * * * * * * * * * * * * * * *
6/08 Right breast, intraductal carcinoma, high nuclear grade associated with comedo necrosis; extensive diffusely involved the entire biopy specimen. ER+, PR-, Her2 unknown at this point, 07/08 mastectomy.
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02-18-2007, 04:42 PM
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#3
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Senior Member
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
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Kate, Thats what I thought...that my surgeon would check at least one node. But his LONG time nurse says he is not going to. I just can't see why they can't check it this time without causing problems? I will have to call and ask why he can't at least inject the dye so they can look? I don't get it? I am glad to hear you've had no problems with your left arm.
As to having both surgeries at the same time...thats what my GYN's nurse suggested & she is the one that sets up the surgeries. But I ran this by my surgeon and he said NO, absolutely not. I don't like being put under extra times if there is a way to avoid it.
Thanks Kate.
Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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02-18-2007, 04:59 PM
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#4
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Senior Member
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
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Val, All I can get from him for the reason is my mammo, US, & MRI gives more of a benign appearing masses. (He says they are lymph nodes) He told me in a sort of nasty way, "I can dig in there if thats what you want me to do and have your arm and every thing swell up"! He seemed so angry. With my bc history and the pain I am having...I would think it wise to check at least one? What is causing those nodes in breast & axilla to be enlarged? Something is? Its hard to ignore with the pain I have & my BIG boob. Frustrating.
Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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02-18-2007, 06:52 PM
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#5
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Senior Member
Join Date: Feb 2005
Location: Wisconsin
Posts: 159
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Sounds like a second opinion would be helpful. You need to be comfortable with what is happening, and a 2nd opinion may do that for you. I understand where they're coming from on the dye thing--I'm not sure where they would inject the dye--don't they usually inject it at the tumor site and watch where it goes? If there is no tumor site, they wouldn't have a place to put the dye...in theory then, there is no sentinel node. But still....it sounds like something is going on. I hope everything works out for you the way you want it to :-)
Val
__________________
BLOG:
http://valleygirlvnp.blogspot.com/
Dx 11/04, Age 42, ER-/PR-, HER2+++
3 months weekly Herceptin, Taxol. Carboplatin
Significant tumor shrinkage
Mastectomy 3/05; Stage 3b, 9 cm tumor, 5/8+ nodes
3 more months weekly Herceptin, Taxol. Carboplatin
7/05 30 radiation treatments, IMRT planning approach
Started 1 year of Herceptin 9/05
9/06 Began quarterly triple doses Herceptin. Brain & breast MRIs semi annually.
* * * * * * * * * * * * * * * * * * * * * * * * * * *
6/08 Right breast, intraductal carcinoma, high nuclear grade associated with comedo necrosis; extensive diffusely involved the entire biopy specimen. ER+, PR-, Her2 unknown at this point, 07/08 mastectomy.
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02-18-2007, 07:44 PM
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#6
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Senior Member
Join Date: Jan 2006
Location: New Jersey / Miami, Fl
Posts: 50
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proph mast
I had a proph mast on my right side after chemo for DCIS and IDC in the right breast which was removed prior to chemo. I had decided during chemo to have it removed.
Of course, everyone is different, and personal choices are exact that, personal, however, I am glad to have had the mast and the SNB that my breast surgeon insisted I have.
After deciding on the second Mast, my breast surgeon ordered another MRI. A new tiny (mm's) suspicious lump was found, core biopsy showed benign. She actually took two nodes, because the first had some gunk in it that tested benign. The second was clear.
I personally feel more confident now knowing the nodes I have are clear.
Good luck with your decision.
I know you will do what is best for you.
__________________
Dx @ 29 years old in 8/05
Stage 1
2 IDC tumors (.7 cm and .5 cm)
4 cm DCIS
0 nodes
ER-/PR-
Her2+ (5.33 FISH)
AC (4 cycles)
Bi-lat mastectomy w/ lat flap recon + cohesive gel implants
1 year (every 3 weeks) Herceptin
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02-18-2007, 09:46 PM
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#7
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Senior Member
Join Date: Dec 2005
Location: Alexandria, VA
Posts: 1,055
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Hi Chelee,
Mekasan's post shows it can be done.
There's no right answer. With SNB, there's a smaller chance of lymphadema, but there's still a chance. I haven't had any problems. They won't use that arm for anything though. Oddly enough, they injected the blue dye around the nipple even though the tumor was at 3:00.
One way or another you'll get thru this. BB
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