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01-20-2007, 09:08 PM
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#1
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Senior Member
Join Date: Sep 2006
Location: Bartonville, IL
Posts: 70
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Muga scan-How often with herceptin?
I had a Muga scan prior to AC. It was a 64. Prior to herceptin it was 51. The oncologist wants to repeat it 6 mo. after Herceptin was started. I thought every 3 months was better. What has your doc recommended or what is the "standard" concerning muga scans and Herceptin? Thanks!
__________________
Karla
8/05 NORMAL MAMMO
11/05 DX AFTER FINDING LUMP AGE 47
STAGE 1 HIGH RISK
1.1 CM/NODE NEG
ER-/PR- HER 2 +++ GRADE 3
12/05 PARTIAL MASTECTOMY
1/06 CHEMO AC DD X 6
5/06 RADS X 30
10/06 STARTED HERCEPTIN AFTER 3RD OPINION
3/07 GENETIC TESTING-GENE VARIANT FOR BRCA 1 AND 2
3/07 STOPPED HERCPTIN DUE TO LOW EF
BSO 8/08 (P53 SIGNATURE--PRECANCEROUS CELLS)
11/08---IN A STUDY/MRI EVERY 6 MONTHS/MAMMO EVERY YEAR
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01-20-2007, 10:18 PM
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#2
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Senior Member
Join Date: Dec 2005
Location: Alexandria, VA
Posts: 1,055
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I thought the protocol was every 3 mos. When mine went up to 70 from 56 on Herceptin, we went to the 6 month plan. I think if you are in the low 50's I would stick to the 3 month plan. I'd try the COQ10 if you're not doing rads for the fun of it as well. BB
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01-20-2007, 11:48 PM
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#3
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Senior Member
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
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As Bev just said...I have always heard the stardard protocol on MUGA/ECHO's was every 3 months. My onc goes just a bit over three months which is fine with me. But I would be uncomfortable waiting every six months. I think I would just express your concerns about waiting that long. Your onc will probably understand and ok it.
Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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01-21-2007, 10:39 AM
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#4
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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I had an echo before chemo began. Then wasn't given a MUGA until 4 months into herceptin. That Muga was fine so oncologist doesn't do any more unless symptoms warrant. I questioned this protocol and was told that "TYPICALLY" adverse effects of herceptin occur within the first 4 months. If I was feeling fine and all else checked out she didn't do MUGA'S. I was a bit leary of this approach but went along with her thinking. Thankfully, I was fine and handled herceptin well.
God Bless -
Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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01-21-2007, 11:31 AM
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#5
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Senior Member
Join Date: Jul 2006
Location: ontario, canada
Posts: 48
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Hi,Karla,
The MUGA I had done after chemo and rads showed a LVEF of 55%. But I had no pre-chemo MUGA done, so it's not certain if the AC lowered it, or if it is normally low (at least to me, 55% seems low). My onc will do them every three months. I go for my next one Feb 13. Will be interesting to see if it has dropped any more.
Blessings, Karen
__________________
Karen
"The Good Lord gave us mountains, so we could learn how to climb!"
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01-21-2007, 03:10 PM
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#6
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Senior Member
Join Date: Oct 2006
Location: Louisville KY
Naples FL
Posts: 665
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Hi all
My pre-chemo muga was 72. After four A/C's it dropped to 59 and after
Herceptin for 11 weeks 55. I will have muga and echo in two or three months.
They think the first muga was inaccurate, a little too high. I had radiation
after the A/C and now Herceptin.
patb
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01-21-2007, 05:50 PM
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#7
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Senior Member
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
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Karla,
Protocol for either a MUGA or electrocardiogram and every three months while you're on Herceptin. I would insist on every three months.
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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01-22-2007, 06:46 AM
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#8
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Senior Member
Join Date: Sep 2006
Location: Bartonville, IL
Posts: 70
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Going to insist on Muga every 3 mo. Don't know why oncologist said every 6 mo. Thinking about going back to Chicago for opinions and treatment.
__________________
Karla
8/05 NORMAL MAMMO
11/05 DX AFTER FINDING LUMP AGE 47
STAGE 1 HIGH RISK
1.1 CM/NODE NEG
ER-/PR- HER 2 +++ GRADE 3
12/05 PARTIAL MASTECTOMY
1/06 CHEMO AC DD X 6
5/06 RADS X 30
10/06 STARTED HERCEPTIN AFTER 3RD OPINION
3/07 GENETIC TESTING-GENE VARIANT FOR BRCA 1 AND 2
3/07 STOPPED HERCPTIN DUE TO LOW EF
BSO 8/08 (P53 SIGNATURE--PRECANCEROUS CELLS)
11/08---IN A STUDY/MRI EVERY 6 MONTHS/MAMMO EVERY YEAR
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