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Old 01-18-2007, 12:04 PM   #1
suzan w
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I didn't have a port. Did get the neulasta shot with each chemo and noticed severe bone pain the next day!!!
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age 54 at diagnosis
5/05 suspicious mammogram-left breast
5/05 biopsy-invasive lobular carcinoma with LCIS,8mm tumor,stage 1 grade 2, ER+ PR+ Her2+++
6/14/05 bilateral mastectomy, node neg. all scans neg.
Oncotype DX-high risk
8/05-10/05 4 rounds A/C
10/05 -10/06 1 yr. herceptin
arimidex-5 years
2/14/08 started daily self administered injections..FORTEO for severe osteoporosis
7/28/09 BRCA 1 negative BRCA2 POSITIVE
8/17/09 prophylactic salpingo-oophorectomy
10/15/10 last FORTEOinjection
RECLAST infusion(ostoeporosis)
6/14/10 5 year cancerversary!
8/2010-18%increase in bone density!
no further treatments
Oncologist says, "Go do the Happy Dance"
I say,"What a long strange trip its been"
'One day at a time'
6-14-2015. 10 YEAR CANCERVERSARY!
7-16 to 9-16. Extensive (and expensive) dental work done to save teeth. Damage from osteoporosis and chemo and long term bisphosphonate use
6-14-16. 11 YEAR CANCERVERSARY!!
7-20-16 Prolia injection for severe osteoporosis
2 days later, massive hive outbreak. This led to an eventual dx of Chronic Ideopathic Urticaria, an auto-immune disease from HELL.
6-14-17 12 YEAR CANCERVERSARY!!
still suffering from CIU. 4 hospitilizations in the past year

as of today, 10-31-17 in remission from CIU and still, CANCER FREE!!!
6-14-18 13 YEAR CANCERVERSARY!! NED!!
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Old 01-18-2007, 01:45 PM   #2
tricia keegan
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Hi Kriss

I had no problem sleeping on my stomach with the port and I'm sure your's will settle down too.
I also had absolutly no pain from the neulasta although I had heard the bone pain can be bad for some, I had four in total and no bone pain with any of them.
I only had one period a week before I began chemo and nothing after that so can't help you there.
My period did'nt return so six months after chemo I had my ovaries removed.
Good luck with the rest of your treatments!
Tricia
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Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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Old 01-18-2007, 07:20 PM   #3
sassy
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Kriss,

After having the port in for a week or so, you probably won't even notice it anymore. Mine has been in for two years and I never think about it, except when it is being accessed. I did have Neulasta and had bone pain after each shot, so my guess is, if the first shot didn't bother you, you may not experience any side effects. I had one small period after first chemo--then no more. I have been on Lupron to keep me post-meno. Have just had to switch from 3 month shot to monthly because my estrodial level started to rise.

Up until this point my surgeon has not wanted me to have surgery to remove ovaries due to some other problems I have had. Those have all resolved now, so he gave me the green light for surgery if needed. I talked to my onc about it two weeks ago, and he prefers that I stay on Lupron if it continues to work. He got some information at San Antonio the Lupron may be more beneficial to HER2's than previously known. In studies now.

Good luck to you.
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Last edited by sassy; 08-22-2011 at 09:00 AM..
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Old 01-19-2007, 11:55 AM   #4
DonnaD
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Hi Kriss,
I to had to have the nuelasta shot. I will continue to have it until chemo is done. I have had three shots and have experienced no bone pain. Good luck to you and God Bless!
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Old 01-19-2007, 01:34 PM   #5
Jean
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Hi Kriss,

I had the neulasta shots - the first one gave me very mild bone ache
the following day. Thereafter it was even less, the shots were not a
problem at all. I wish the same for you. The very best of luck during your
treatment. Keep us posted on your progress.

All good wishes,
Jean
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Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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