 |
01-18-2007, 09:05 AM
|
#1
|
|
Senior Member
Join Date: Nov 2004
Location: Colorado
Posts: 131
|
Gold Bond
Sheila -
Lisa had pretty bad HFS (Hand/Foot Syndrome) on Xeloda as well, and found the Udder Smooth cream to be fairly worthless. After trying numerous products she had the most luck with Gold Bond Medicated Hand Cream - might work for you and be a little less pricey!
Love and Light
Mel
__________________
Mel Gordon, Husband of Lisa Lowe - Queen of Love and Light and the bravest person I know!
|
|
|
|
01-18-2007, 10:54 AM
|
#2
|
|
Senior Member
Join Date: May 2006
Location: northshore suburb of chicago
Posts: 1,093
|
Sheila, ever since my trip to Israel, I have been using Ahava products. They are wonderful but as Sandy stated, what works for some doesn't always work for others. So glad you found something that works for you.
__________________
~Rina~
Dx:3/06 had a lumpectomy April 19, 2006
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
AC 4 dense doses
34 radiation treatments including booster doses
receiving herceptin every 3 weeks since late August 2006 for 12 months
|
|
|
|
|
01-18-2007, 02:58 PM
|
#3
|
|
Senior Member
Join Date: Mar 2006
Location: IOWA
Posts: 243
|
Thanks for sharing, Sheila!
__________________
Andi
-- ------------------------
Stage IIIC, 17 of 20 Nodes +, E+, Her2+++
Diagnosed 6/30/05
Lumpectomy 7/13/05
Dose Dense A/C x 4
Weekly Taxol + Herceptin x 12
Remainder of year Herceptin Every 3 weeks (completes 9/13/06)
Radiation completed 2/28/06
Currently on Tamoxifen
Dec 06 - Pleural effusion treated with pleurodesis
Now er/pr-, her2++
1/07 started weekly Navelbine plus Herceptin
Discontinued Tamoxifen
4/27/07 CTshowed progression
5/01/07 Began Tykerb/Xeloda + Zometa
5/22/07 Stopped treatment due to great progression
|
|
|
|
|
01-18-2007, 06:45 PM
|
#4
|
|
Senior Member
Join Date: Nov 2005
Location: Lincoln, Rhode Island
Posts: 371
|
Yes thank you so much for sharing. I have been on Xeloda for three months and my hands and feet look gross. I have been using the Udderly Smooth it seems to help with the pain but my hands and feet look horrible. I will try this hand cream you recommended. And I'll let you know how it works for me. 
__________________
Love and Hope
Karen
IDC
DX 1998 STAGE I ER+/ PR+
AC CHEMO TILL FEB 1999
Tamxofin till 2001
2001 exstensive liver mets and mets to lungs
Started weekly taxol
Jan 2002 found out I was strongly HER2POS+++ started herceptin continued with taxol and herceptin till June 2002 then from June 2002 till Jan 2005 just herceptin and Arimidex
2005 Navelbine herceptin had RFA Then back on taxol with herceptin
April 2006 progression again went on clinical trial with tykrerb/herceptin progressed on the started Xeloda/ herceptin
Feb 2007 started Doxil
August 2007 Taxotere,Carboplatin and Herceptin exstensive mets to liver and pancreas
October 2007 Had to stop Carboplatin due to sever allergic reaction
Jan 2008
Stopped Taxotere due to progression now on Gemzar and Herceptin
March 2008 Starting Carboplatin, Abraxane, and Herceptin.
|
|
|
|
|
01-18-2007, 07:06 PM
|
#5
|
|
Senior Member
Join Date: Mar 2006
Location: (Hill Country) Texas
Posts: 72
|
Ladies,
Thank you for your suggestions. I had a lot of problem with Hand & Foot Syndrone when I was on Taxotere. I found that Udder Balm a lot better than Udderly Smooth. The Udder Balm you can get at a Hardware store or possibly a feed store (since it is used on cows). I am very interested in the other suggestions because I still have a lot a problem with cracking fingers and I have been off Taxotere for over a year.
Where in Israel can you find Ahava? I am suppose to be going there this summer with my husband.
__________________
Jackie
Stage II, Grade 2, DX 4-05
EP +, HER2 +++,
1 node+, 1.6cm
46 yrs. old at time of dx.
Completed Chemo 11-05
Completed 1 yr. Herceptin 8-06
|
|
|
|
|
01-19-2007, 06:43 AM
|
#6
|
|
Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
|
Jackie
You can get it here in the states at some TJ Maxx Stores, online, on EBAY....seek and ye shall find...it is marvelous! My hands have not cracked in over a week....
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
|
|
|
|
|
01-21-2007, 12:20 AM
|
#7
|
|
Senior Member
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
|
I will have to look that one up...never heard of it but it sounds like it works wonders.
The one that saved me was "Camille Beckman" hand therapy. Its almost pure Glycerine, almond oil, & aloe vera. Its wonderful stuff...works like nothing else I've ever tried. They also have different products...some for the feet too. I haven't tried that one yet. You can find this hand cream online or at speciality stores. I love to put it on at night when I know I won't be washing my hands...that way it gets to soak in my skin. This stuff saved me.
Seems we have all searched till we found that one special cream.
Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
|
|
|
|
| Thread Tools |
|
|
| Display Modes |
 Hybrid Mode
|
Posting Rules
|
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
HTML code is Off
|
|
|
All times are GMT -7. The time now is 01:17 PM.
|
