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Old 01-04-2007, 07:39 PM   #2
Barbara2
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Join Date: Sep 2005
Location: South Dakota.
Posts: 621
Ditto!

My onc told me the same thing after I finished my "late" herceptin in June. When I asked if the port should be taken out, he said, "Why don't you hang on to it for a while?" It made me think he felt there was a good chance it might come back, so why not keep it. He's pretty good at talking both ways, though, so he quickly added, "If you want to take it out, go ahead. It can always be put back in if needed."

I kept the port and am now getting the montly (or longer) flushes. My first port never did feel right, but this one is more comfortable, so I guess I don't mind keeping it. Not too crazy about having to continue the coumadin, too, but guess there's not a choice regarding that.

I don't know about your marker numbers. Did you have the tumor markers taken during the year of herceptin at all, to know how the markers were during that time? Maybe after a time away from herceptin, they will drop a little. I'd ask your onc what she thinks about the marker numbers.
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Blessings and Peace,
Barbara

DX Oct 02 @ age 52 Stage 2B Grade 3 Mastectomy
"at least" 4.5 cm IDC 1+node ER+61% /PR-
Assiciated Intraductual component with Comedo Necrosis
Her2+ FISH8.6 IHC 2+
5 1/2 CEF Arimidex
Celebrex 400mg daily for 13 months
Prophylactic mastectomy
Estradiol #: 13
PTEN positive, "late" Herceptin (26 months after chemo)
Oct 05: Actonel for osteopenia from Arimidex.
May 08: Replaced Actonel with Zometa . Taking every 6
months.

Accepting the gift of life, I give thanks for it and live it in fullness.
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