Want to talk with ER/PR neg and HER2 pos

yes hopefully we can all beat it....thanks for the welcome and all the very best with your journey to conquer it completely
Margi

[rinaina]

Hi Catherine, I was as confused as you are in the beginning but that is the beauty of this site. You will find just about all you need here. I too am er/pr negative, node negative, stage I. Feel free to contact me by email if you ever need to talk.

[Brenda_D]

I am also ER- (0) PR- (0) and Her2 + (3)
I'm just beginning my journey into treatment.

[Wendywins]

Those who get to have herceptin should take heart! It sounds like the best treatment.
Taxol turned out to be the worst in terms of side effects (ie bad effects) on me...and so Herceptin sounds soooo much easier to take and recover from.

For taxol tips, check out this site and others. It and it appears that the carrying agent for taxol ( rather than the taxol itself )may be harder on folks in terms of joint pain, burning palms/soles, puffy feet, neuropathy and the shooting pains etc.. Not everyone gets these effects but those who do need to let their doctor know so that possibly the dosage can be reduced or alternative formulations if any considered , I think. Sounds like some get this kind of reaction from taxotere?as well.

Longterm affects from taxol on joint pain, feet etc can be alleviated but many oncology docs do not seem to have a clue as to how so sites like this are great to find ways to cope , compensate, alleviate. I had to do a lot of hunting to find out that I was not "the only one" who had these affects . Doctors are apparently assured by drug companies that the adverse reactions are extremely rare and thus assure patients that the affects are rare and if present will disappear quickly and are flummoxed in cases where 90 days later or more, they are still present. There are simple things one can do for oneself...which aid greatly in comfort and recovery. One is simply changing to "wide shoes" with minimum sides ...like sandals or earth shoes even if one has never worn them before... Trust me, its like a miracle for those who have been in foot pain from taxol. Life is great when you can WALK again!!
Warm weather and warm water exercise also helps joints. I personally prescribe a warm dry climate and swimming in warm water! If you can, you owe it to yourself.

[tousled1]

I'm currently on Taxol and must admit that I found Taxatore much harder to deal with. I think a lot of it is the amount of Decadron that you are given as a premed. I get less decadron with Taxol than I did with the Taxatore.