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Old 12-28-2006, 11:05 PM   #1
tousled1
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Angela,

Getting your port in is a breeze. I had mine done without a general anesthesia -- sort of in a twighlight zone. You should not require any pain medication meds and should be able to go to work the following day. When I had my port put in I went to my surgeon's surgery center had the port put in and then went to the oncologist's office for my first round of chemo.
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Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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Old 12-29-2006, 01:06 AM   #2
Chelee
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Angela, I had no problems with mine either as Kate already mentioned. I really dreaded it and didn't want to do it but it was a piece of cake. I was wide awake and they just numb that area. (Mine is in my upper arm.) I just layed there while he put in it. I did NOT feel a thing.

As to what to expect...we are all different. But for me...I did have a little soreness in mine for a few days. It wasn't too bad though....just uncomfortable. But its done pretty quickly and I have had no problems with it since it was put in back in March o6. (Knock wood.)

I know I was told to keep mine clean and dry for a week I believe it was? But again...my port is in my arm unlike others that get theirs in the chest area.

Good luck...but don't worry about this...it really is no problem.

Chelee
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DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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Old 12-29-2006, 04:04 AM   #3
tricia keegan
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Angela my port was in my chest and I had it put in with "Twilight" sedation although it completly knocked me out so I don't remember much.

I did have some soreness for 7-10 days but nothing too bad that would have kept me off work.
I just had mine removed after my last herceptin with a local and it was fine.
Good luck.
Tricia
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Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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Old 12-29-2006, 06:06 AM   #4
janet/FL
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I was shoveling rocks the day after I had my port put in. Later I read the insturctions and they said no heavy lifting for 48 hours! No problems at all.
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Janet
Endometrial Cancer 2002
Mammogram 11/2004
Lumpectomy 12/2004
Stage 1, 9mm DCIS, grade 2, Her2+++, ER/PR negative
Refused A/C as recommened by two oncs.
35 treatments of radiation that ended March 4, 2005
Changed oncologists and began
Taxotere/Herceptin August 2005. Finished Herceptin July 2006
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Old 12-29-2006, 06:41 AM   #5
KRISS
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I have a question following this line. I am assuming I will get a port. How do you keep it clean and dry. I am a zoo keeper and am around flying crap and hay and dust all day. I'm starting to worry with the heavy lifitng and poop I may have some problems.
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DX IDC AT 42 12/7/06
2.2CM STAGE I GRADE 2
NODE NEG
PARTIAL 12/18/06
HER2+ /ER+(75%) PR+(5%)
4 DD AC CHEMO STARTING 1/10/07
4 DD Taxol Starting 3/5/07
1year weekly Herceptin starting 3/5/07
finished 2/18/08
changed to every 3 weeks 4/23/07
completed 33 radiation treatments 7/6/07
TAH and BSO 9/24/07
start Femarra 10/8/07
Started Neritinib trial 12/14/09
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Old 12-29-2006, 06:44 AM   #6
tousled1
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My port is in my upper chest and I was told to keep it clean and dry for a short period of time. Just enough time for it to heal over. After that no problem - I can go swimming, shower, etc without fear of getting it wet. I've had mine in for a year now and have basically gone on with my regular life style without any problems.
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Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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Old 12-29-2006, 08:32 AM   #7
Mary Anne in TX
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No Problems

Hi Angela!
It is unnerving when they do anything to me! At least the thinking about it is! But I'm such a chicken until the time to do whatever comes. Once I see what will happen I do great!
But the port was easy. They did put me to sleep to put mine in my upper chest, left side. It's been there 9 months and it's worked great! I didn't need anything but Tylenol (once) afterwards. They tell you just to be careful a few days. And I did that! Soap and water when you shower is what they told me to do to keep the area clean from germs! I got my first chemo about 5 days later.
I'm so glad that I did the port. It has made chemo easier.
Best of luck and Happy New Year!
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MA in TX.
Grateful for each and every day....

Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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Old 12-29-2006, 05:00 PM   #8
janet11
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Kriss,

A port is totally under the skin, so it's protested quite well from flying debris. Mine is in my chest just above the breast, in an area covered by my shirts and blouses. They used a general anesthetic for me when they put it in and after a couple weeks, it didn't bother me when I lay on my side to sleep. It's been wonderful!!!

Janet

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Janet in Rowlett Texas

Dx July 2006 IDC 1.8cm, ER-/PR- HER2+ (FISH 7), KI67 High (60%) grade 3, TOPO II neg
Aug2006: lumpectomy, SNB (4 nodes neg), Stage 1
Jan 2007:
Finished 6 cycles of TCH (Taxotere, Carboplatin, Her ceptin). Then Herceptin every 3 weeks.
Feb 2007: Completed Radiation
May 2007: Stopped Herceptin due to low LVEF (49%)
July 2007: LVEF now 44% -- starting Coreg
May 2008: Heart NORMAL! Yippee.
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Old 12-29-2006, 10:52 PM   #9
Chelee
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Sue, Your port must be new. My port and most that I know of can't be used for CT/contrast dyes, etc. I wish mine could be used for that...would make things much easier for all my scans. Sounds like you lucked out with this new type of port.

You mentioned being black and blue. I can relate...mine was placed in my upper arm and it was black & blue ALL the way AROUND my entire upper arm. It looked awful. Looked worse then it felt...but I had blood thinners in me at that time so I think that is what made mine worse. I know several nurses asked me what happened? lol No one wanted to touch mine for over a week. Thats how bruised and discolored it was. But thankfully its been working great...does the job.

Enjoy your power port...sounds pretty cool. You must of gotten to drive the latest model off the lot. lol Thats going to come in handy! Wish I would of had one like that to start with.

Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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Old 09-25-2007, 06:58 AM   #10
Lee
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Kriss -
If you get a port in your chest, it is completely under the skin so no special care is needed. It just looks like a bump on your chest. When the port is accessed, they have to stick it with a short needle, but it really doesn't hurt much at all.

It is so much easier when getting chemo - I have never regretted having one put in.
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Old 09-25-2007, 01:40 PM   #11
Andrea Barnett Budin
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Exclamation I Love My Port!

My port was installed in '98 in my upper chest under twilight. I love my port. It is a tiny half a golf ball lump that is a bluish tinge.

I used to get a lidocaine spray, but nurses have told me that IT IS JUST ANOTHER INVITATION FOR GERMS AND AN INFECTION TO GET IN THERE. So, now, I just brave it out. A skilled nurse gets dead center and you basically feel nothing.

IF YOU ARE BETWEEN TX for a long period of time -- remember -- you must get your port FLUSHED monthly!

IF YOU HAVE DENTAL WORK (including cleaning) my onc says that if you have a port -- YOU MUST TAKE AMOXICYLINE (how in the world do you spell that??!) which is an antibiotic -- 1 hr prior to dental appt. 4 X 500 mg.

A PORT IS A DIRECT LINE INTO YOUR VEINS AND HEART. You must protect it at all times. I am most particular about who I allow to access it. (When I broke my ankle and required surgery in '01, they did not know how to access a port in anesthesia, or they preferred not to use it.) After surgery, I was receiving morphine through my port, when it came time to check out sev days later I kept calling the nurse to take out the morphine needle. Apparently, she didn't know how and kept leaving and coming back, then when she removed it/yanked it out, blood starting pouring all over! So, I have learned a good lesson.

Before and after accessing, they use saline to clear the port and then heplok to seal it. They also use something to sterilize the area prior. Afterward, they put a circle bandaid to keep in place till I shower, as they would an injection. I am told they do not need to put gauze and tape on it, it isn't a wound.

HOPE THIS IS HELPFUL! My port is one of the best decisions I have ever made. I just love having it (as the one part of me that is *skinny* is my veins)! I am told once they find one it rolls over, collapses or blows out. So they just keep stabbing -- and digging -- away otherwise. Be good to your port, ladies. It's your best friend. Keep it, and YOU, safe.... Love,
Andi
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Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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