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Thanks Rhonda for starting this. I feel I owe part of my 6 year survivial with IBC (the most aggressive and deadly form of bc) to you both. You have provided me with a wrealth of info, support friends from a far (as right now I have no one in my state) and it is inspiring to know I can call you for help anytime. I thank God and my sister in law (who gave me the article in the Family Circle) every day for this site. I would be lost without it. It is the first thing I do every morning, several times during the day and the last thing at night is check this site. It almost addicting but a good addiction. Wishing you both a very Blessed Christmas and a Happy Healthy New Year. Again thanks for all you do for us. Sending you a big hug for Christmas. Sandy
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Dx. 03/01, Rt. IBC
AC/Taxatere
Rt. MRM-with graft Lt. simple
5 rads-skin mets
Herceptin, taxol, carboplatin (taxol seem to be the magic drug)
Navelbine & xeloda (did not work)
topical miltex for skin mets
Tykerb/xeloda
thoracentesis x 2 left lung fluid shows cancer cells
Port removal (4 years) with power port replacement
Doxil
Updated 05-07 Scans show no bone or organ involvement we shall see!
I shall not pass this way again. Any good I can do or any kindness that I can show let me not defer or neglect it for I shall not pass this way again.
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