Her2 positive and no test

[Karen W]

I was also diagnosed with stage 1 bc. I had a 1.3 cm tumor, node negative, er/pr+ and Her2+++. I did not have scans either.

Karen

[AlaskaAngel]

Hi you two. Count me in as a T1c (Stage 1, 1.6 cm, HER2+++, ER+/PR+.) I put my opinion on the Eric's thread about 2 questions....

4 years out and NED,

AlaskaAngel

[rinaina]

I am her2+ no nodes,er/pr negative and had ac, rads and now herceptin and my onc doesn't order routine scans either at least not at this point. There are a lot of us on here who have never had scans but many who have. Certainly if you are having any symptoms that last more than a few weeks, bring it to your onc's attention and perhaps then a scan may be ordered.

[atdec05]

Hi,

I also haven't had scans. I think this is standard for stage 1, node negative women. I am completing my year of herceptin Jan 31 and my doctor said there might be scans at that point. I now I'll at least get a bone density test to make sure the chemo hasn't affected my bones.

I guess the assumption is if you're node-negative, the likelihood the cancer had spread is very low.

- Anna

[tousled1]

To put your mind at ease, I don't believe that scans are routinely done on Stage I patients. I am surprised that upon initial diagnosis that no bone, CT scan was done. If it would put your mind at ease, tell your oncologist that you want the tests done. The only problem may be your health insurance refusing to cover the costs.

[suzan w]

After my diagnosis I had a bone scan and a CAT scan. Then I had a liver ultrasound because the CAT scan showed something...it turned out to be nothing. I had routine bloodwork done during my chemo and year of herceptin. Also a MUGA every 3 months. I had another bone scan done after herceptin (my request). My oncologist says she will order any scans I want, but she does not routinely have them done. I go back in Jan. for my first "3 month" check-up.