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Old 12-19-2006, 03:48 AM   #1
RhondaH
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Location: Grand Rapids, MI
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Smile Michele...

I JUST bumped up my "Just for fun post" and KNOW there are attorneys listed. Please scan through it and maybe email someone in case their not on the board much? Take care and God bless.

Rhonda
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Rhonda

Dx 2/1/05, Stage 1, 0 nodes, Grade 3, ER/PR-, HER2+ (3.16 Fish)
2/7/05, Partial Mastectomy
5/18/05 Finished 6 rounds of dose dense TEC (Taxotere, Epirubicin and Cytoxan)
8/1/05 Finished 33 rads
8/18/05 Started Herceptin, every 3 weeks for a year (last one 8/10/06)

2/1/13...8 year Cancerversary and I am "perfect" (at least where cancer is concerned;)


" And in the end, it's not the years in your life that count. It's the life in your years."- Abraham Lincoln
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Old 12-19-2006, 04:03 AM   #2
tousled1
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Location: Acworth, GA
Posts: 2,104
A good place to start may be National Coalition for Cancer Survivorship (www.canceradvocacy.org. I belong to the Cancer Advocacy Now that shows you how to write to your senators and house members. They are currently working on lobbying to get the Comprehensive Cancer Care Legislation passed. It's a grassroots organization but could be a good place to start.
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Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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Old 12-19-2006, 04:35 AM   #3
saleboat
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Location: NYC
Posts: 250
Hi Michele,

I'm really glad to hear the good news about Tykerb, but have no desire to go on it myself. I'm just not convinced that it can do anything for me over and above the treatment that I've already had. But I also can use hormonal treatments, so that gives me a sense of 'doing something' to continue to fight the cancer. (Hopefully it is doing something worthwhile!)

Wondering if there were any updates on the big adjuvent Herceptin studies? The data in the NEJM study showed that relapse for Stage 3 patients leveled off after three years-- in other words, the patients looked 'cured' (fingers crossed) once they reached three years past randomization.

Jen
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dx 4/05 @ 34 y.o.
Stage IIIC, ER+ (90%)/PR+ (95%)/HER2+ (IHC 3+)
lumpectomy-- 2.5 cm 15+/37 nodes
(IVF in between surgery and chemo)
tx dd A/C, followed by dd Taxol & Herceptin
30 rads (or was it 35?)
Finished Herceptin on 7/24/06
Tamox
livingcured.blogspot.com

"Keep your face to the sunshine and you cannot see the shadow." -- Helen Keller
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