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You reach NED when there is no active cancer that shows up in your body. Usually this is determined by doing a PET/CT. I started chemo (taxotere, Xeloda, Herceptin) in January and I was told that I was NED in April after my PET/CT came back clean..(I had two small lung mets). Since April I have had 1 CT scan, and just had another CT/PET in September and they have all come back clean. I also have had 2 brain MRI's since then, because I have headaches from Herceptin and I get freaked out and make my Oncologist order me MRI's..lol....they have also come back clean. Some doctors don't routinely do these scans. Mine scans me every 3 months, I guess because I was stage IV and he wants to keep an eye on me. ..sherryg
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